Kristina Golovchanskaya from Voronezh, Russia is seventeen months old and has been diagnosed with a disease called Spinal Muscular Atrophy (SMA) Type 1.
The life expectancy of kids with SMA Type 1 without treatment is usually 2 years. To survive, Kristina needs to a one-time injection of a drug called Zolgensma, which is made by the pharmaceutical giant Novartis. For the drug to work, she needs to take it before turning two in January of 2021, assuming she can survive that long. Right now, the only way she can get this drug is to pay for it. At $2.1 million, it's the world's most expensive drug. Like others, we've repeatedly pleaded with the drug's manufacturer, but they have not helped.
We need your help in raising funds to pay for this drug and save Kristina's life. Because SMA Type 1 is aggressive and degenerative, we're in a race against time. With each day that passes, the motor neurons in Kristina's body are becoming inactive.
What can you do to help?
- Please share Kristina's GoFundMe link on your social media accounts to encourage others to support
- Donate what you can, any contribution helps, and all funds will go directly to the family to pay for Kristina's care
- Contact Team Kristina if you would like to volunteer to help
If you'd prefer to contribute through PayPal instead of this fund, you can contribute here:
PayPal: helpkristina at mail.ru
You could learn more about Kristina Golovchanskaya, on her Facebook and Instagram pages:
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