I’m Kendra and I have Late Stage Neurological Lyme Disease:
I loved spending time with family and friends, travelling, socializing, reading, walking and being outdoors. Now my life consists of being bedbound, using a wheelchair/walker, completely dependent on my husband and family for care, and have become extremely isolated.
I’m Scott and I have Chronic Lyme Disease:
Over the past few months I started having some neurological and cognitive issues similar to Kendra’s symptoms. I am the sole income provider for the family, and now struggle at times due to my symptoms. After learning that Lyme Disease can possibly be spread sexually, I was tested for Lyme and co-infections. I have started herbal treatment, but it isn’t helping, and I need to start seeing a Lyme Literate MD to help my symptoms and hopefully get into remission.
We’re Jaxen and Raylan and we have Congenital Lyme Disease:
We have been constantly sick, suffer from muscle and joint pain, have a hard time sleeping, and a lot of anxiety. After learning that Lyme Disease can be spread in eutero, our mom had us tested for Lyme and co-infections. Our results were positive for Lyme Disease and several co-infections. We have started an herbal treatment, but it isn’t helping and we need to see a Lyme Literate MD to treat us.
How funds will be used: Funds raised by this campaign will go towards prescriptions, supplements, IV infusions, and Dr appts.
The Krebs family spends $2000 - $7000 a month out of pocket for treatment/dr appts. This comes out to being half of Scott's yearly salary....
Kendra has suffered from numerous illnesses her entire life, but she always bounced back. After the birth of her second son, Raylan, Kendra’s body no longer bounced back. She was constantly tired, achy and got every cold/flu that came along. She went to several doctors, explaining her various symptoms, asking for help to figure out what was wrong. She was told she needed to lose weight and see a psychiatrist, and that nothing was wrong with her. She lost weight but her symptoms did not get better. She started to just live with them, thinking it was just how life was.
In 2017 after having some back problems, pneumonia, and stressful event, she started having more severe neurological symptoms, severe exhaustion, cognitive problems, and could barely walk. She eventually became bedbound and started having seizures. Kendra found a new doctor who was willing to test her for everything under the sun and send her to various specialists. Everything came up negative, and while her health continued to deteriorate, she was diagnosed with Chronic Fatigue Syndrome. But she received no help on how to treat it. Kendra took it upon herself to start researching possible reasons for her health problems, and started realizing it could be Lyme Disease. Kendra was bitten as a child, and suffered from a high fever after, but at that time in 1980 on the West Coast, no one knew about Lyme Disease. With this information and her research, she asked her doctor to test her for Lyme. Her results came back positive.
In January this year, Kendra was finally diagnosed with Chronic Lyme Disease and co-infections by a Lyme Literate MD in Denton, TX. Tests also showed chronic immune suppression. Lyme disease is a bacterial infection, usually transmitted from the bite of an infected tick. As the disease has been undiagnosed and untreated for many years, it has progressed to late stage and has now affected every system and organ in the body, making it much harder to treat. Kendra is currently being treated by her LLMD; she is on a triple antibiotic treatment (oral and IV) and other prescriptions to help her symptoms and fight the Lyme and co-infections. She is also taking many nutritional and herbal supplements to support her system, and is on a gluten free, dairy free, sugar free diet. She has a port implanted in her chest to give her IV medications.
Daily symptoms include; severe debilitating fatigue and post exertional malaise, chronic widespread muscle and joint pain and inflammation, severe muscle weakness, headaches and head pressure, dizziness, tremors, nausea, IBS, blurred vision, sweats and chills, sleep disturbance and insomnia, palpitations and tachycardia, sensitivity to light and noise, flu like symptoms, brain fog, mood disturbance and anxiety, difficulties following conversations/reading/processing information/concentration, memory loss and many more. Kendra has to spend 15-16 hours a day resting/sleeping in order to be able to care for her boys and cook dinner.
Kendra is unable to do all of the things that we take for granted, and even complain about. She is unable to work, to spend quality time with her friends and family, to chat on the phone, to be outdoors, to drive, to have visitors, even to leave the confines of her home unless it is to attend her numerous medical appointments, which she can only attend with the use of her wheelchair or walker. Despite all this Kendra remains hopeful and positive that she can beat this illness into remission.... but she needs your help to help her family!
We have set up this fundraising page to try to raise funds for the Krebs family to continue receiving treatment, and prevent them from going into serious debt. Their Lyme Doctors and many of the treatments needed are not covered by insurance, so every dollar matters so much.
We know there are so many good causes out there, and are very thankful to everyone for supporting us in any way they can. If you cannot donate, please share our fundraiser!
If you would like to donate, but not through gofundme, please contact me at [email redacted] or you can use venmo.
Our heartfelt thanks to everyone for your love and support.
Kendra, Scott, Jaxen and Raylan
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