Lourie's AVM Surgery Expenses

My dad, Lourie, has been faced with an incredible amount of medical problems throughout his life and he has beaten the odds every time. When he was 18 he was diagnosed with a rare congenital connective tissue disorder called Marfan Syndrome and in 2009 he had open heart surgery. The surgery was an amazing success and they had hoped that the majority of his health issues were behind them. Unfortunately, that is not the case.

 In August 2013 my dad was diagnosed with a spinal AVM, a condition where the arteries connect with veins without the intervening capillaries. The pressure on his spinal cord has become progressively worse, causing him to have less function in his arms and legs. Specialists in Brisbane and Sydney have never seen a single AVM as large as my dad’s before, as it runs the entire length of his spine. They expect the most likely outcome will be paraplegia. They told him that there was nothing that could be done, but he was not going to give up. My parents have been fighting the system for nearly 18 months and they have finally found a surgeon who can help.

On March 2 2015, they will be heading down to Sydney for surgery that will hopefully stop the AVM in its tracks. It’s a high risk surgery and they expect that my dad will require a minimum of 3 weeks in hospital followed by 3 months of rehab.

My parents are forever helping and blessing the people around them, never asking for anything in return. I would love to be able to bless them back and help raise funds to cover some of my mum’s travel and accommodation costs, so that she can be near him when he needs her most. Every donation, no matter how big or small, is greatly appreciated.

Thank you!
  • PJJ Property Pty Ltd Jeannie 
    • $2,000 
    • 75 mos
  • Anonymous 
    • $100 
    • 76 mos
  • Deanna Brown 
    • $50 
    • 76 mos
  • Anonymous 
    • $180 (Offline)
    • 76 mos
  • Anonymous  
    • $1,500 (Offline)
    • 76 mos
See all

Organizer

Zoe Howie 
Organizer
Lota QLD
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