Kobe's battle with Alagille

Baby Kobe  has Alagille Syndrome.  He is 18 months old.   Alagille is a rare genetic disorder that can affect multiple organ systems of the body including the liver, heart, skeleton, eyes and kidneys.  Kobe’s case of Alagille is severe and he has many complications.  His most severe complication is liver failure and he is on the waitlist for a liver transplant. 
 Please help support Kobe and his mom, Erin.  She wants to be with him when he is so often hospitalized, however, because she works full-time she cannot. She has applied for family medical leave, but it does not pay her while she is away. She can’t afford to be with him in the hospital and pay his medical expenses.