Hi! We are raising money to help my brother's family with medical and travel expenses for my nephew Knox's upcoming surgery.
He and his wife, son and baby daughter have to travel to and stay in Florida for at least 4 weeks for the surgery in March 2019. If there are complications, they might have to stay even longer. Then, they will have months of PT appointments back in Denver while Knox learns to walk again.
Knox is a 4-year-old boy who was born with PFFD/CFD as well as fibular hemimelia, which means he is missing his hip joint, femur and fibula on his right leg, causing that leg to be about half the length of his left leg. He has worn a prosthetic leg since he was 10 months old. Knox is a sweet kid who loves to run and play sports. However, to retain his mobility as he grows bigger, he needs to have a major surgery called rotationplasty.
Simplistically explained, rotationplasty is a surgery in which the leg is partially amputated, rotated 180 degrees and reattached, resulting in the foot pointing backward. This new structure of the leg allows the backwards ankle to function as a knee. The foot slides into a prosthesis and is angled down, essentially acting like part of a lower leg and controlling the prosthesis. Rotationplasty allows people to function similarly to a below-knee amputee.
There are only a handful of surgeons with experience performing rotationplasty on patients like Knox, so that's why his family is going to Florida to have the surgery with one of the world's top limb surgeons.
Please note that we have added $2,000 to our goal, as that would allow Knox's mom and dad take Knox to Disney World for a few days the week before he has his surgery (he has to be there for a pre-op appointment a week early). It will be many months before Knox will be able to walk independently again, so although of course medical and travel expenses have priority, we'd love to give him an amazing experience at Disney before surgery.
Knox's parents have carefully estimated what their costs will be, but if any money raised is left after they are through this challenge, it will remain in the Knox Hebert Medical Fund and will be used for Knox's future medical care, prosthetics, adaptive equipment or adaptive activities.
For more information about Knox and rotationplasty, visit www.knoxbenjamin.com.
Thank you for reading and thanks in advance if you are able to donate!
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