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Stanford opinion for brain tumor

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Hello everyone! As some may know, last year I was diagnosed with a brain tumor located on my thalamus called "ganglioglioma". Over the past year, I have been treated with chemotherapy, and was scheduled to get radiation starting July. I wanted to feel sure about radiation, and a friend sought out to me and suggested I get a second opinion from the best neurosurgeon Dr. Berger from UCSF. Since I'm covered through Kaiser my insurance refused to pay the bill in order to have the files reviewed at UCSF so I payed out of pocket. I now received my second opinion in which Dr. Berger is suggesting I receive another biopsy. In the letter Dr. Berger stated, "what is worrisome on the current film is a signal on the flair around the posterior aspect of the lateral ventricle that was not there previously. I would be concerned that this is an aggressive glioma that is IDH wild type as it appears to be progressing. I would re-biopsy and treat based on this." After the letter was sent over to kaiser Dr. Teng (Radiation Oncologist) and Dr. Levin (Neuro-Oncologist) reached out to me and asked me what I would like to do. I expressed to them that I was confused and didn't know what to do. Dr. Teng confessed that he was also confused, but that he would agree to re-biopsy. While Dr. Levin strongly suggest that another biopsy wouldn't help, and believes I should just do radiation. I ask you, to put yourself in my shoes, and if I was confused about getting radiation then imagine how much more confused I'm feeling now. I have opinions from doctors who are great yes, but aren't agreeing. Each time I face an obstacle I think "God this is the hardest decision I've had to make" this time I truly believe it when I say that this is the hardest decision I'm being forced to make because the doctors don't even seem to be sure on what to do. Confused, frustrated, and feeling emotionally distressed, I am now seeking for a third opinion at Stanford. However, my insurance once more won't cover it, so I am asking for any donation $1, 2, 3 to help me pay for this 3rd opinion. Any contribution is greatly appreciated! May God bless you all.
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    Organizer

    Lizet Campos
    Organizer
    San Pablo, CA

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