Kisses For Kaylee surgery fund

Hi my name is Dianna Fowler and on behalf of my neice Kaylee and her parents Brandon and Kathy Fowler I wanted to set up this page. I had asked Kathy to write a summary of what this sweet little girl has gone through since birth and her upcoming surgery on May 28th.  Please keep them in your prayers.


Kaylee Elizabeth was born on February 8th 2008, at 34wks & 1day. Kaylee was diagnosed with Cerebral Palsy when she was 6months old, also with Factor V (a clotting disorder), kidney & bladder problems. Visual impairment( no right prerif. Vision is either eye) & epilepsy at 9months. Sinus arrhythmia in 2012. We were told Kaylee would never walk talk ect. Because when she had the stroke right before birth she lost 90% of her left side of her brain. Kaylee has defeated the odds that were against her, thank God. We have fought to get her to some of the best doctors for.Oklahoma, New Jersey, Philadelphia, and Texas. And she is an amazing Little girl. Everyday is hard, and we never know what struggles she will face. See we thought we had her Epilepsy under control, but knew she was acting of. December 30th 2013, while I was driving to Altus OK to Drop off my son Joey , Kaylee had a seizure, she'd been upped on her meds before this. And was having a lot of seizures activity but mostly at night... but since that day in December everything has gotten worse, she can't sleep very much she has as much as 100 seizure activity moments a day, she is uncontrolled by her meds and she has scarring on her right side of her brain now. Her vision has gotten worse, she has so many uncontrolled moments, she has walked into the highway, she walked.outta Wal-Mart she has almost been hit by cars, she has almost been bit by dogs. She will cry outta control she will.scream hit, ect and remembers nothing. When she does remember she will cry and say how sorry she is and how she don't know why she did what ever it was. Think any other kid you couldn't talk to or spank and they learn, well with Kaylee non of that will help because that part of her brain is not working it's consumed in Epilepsy. The doctors have all now come to us and told us that we have to act now. To help her stay safe, to help lower her risk for sudden unexpected death in Epilepsy, right now she is in the 99th % but to save her lower.the risk, they will need to do a Cranial for a left functional hemispherectomy, we will have to do this as soon as possible. Because of her risks. We will be doing the surgery on May 28th ,at Dell Children Hospital, in Austin TX. We will be there from the 26th till when ever they release her. She will spend 2days in ICU, or.till she is able.to breath on her own and tubs can be removed. She will then be moved to the surgical floor, in hopes to start intense therapies, for speech, PT, OT, Behavioral, this is a hard, very hard time for our family, my whole family being in New Jersey.they are.trying to do what they can being so far, boy I wish they were closer... Brandon' s brother is in the Navy in VA and his wife Dianna McCauley- Fowler has been calling everyday giving her support also. Family in Newcastle has been amazingly supportive and all of our friends have been amazing all.the prayers.. the kindness from even complete strangers.. the feeling of alone sets in on Brandon and I, but we have or faith. Brandon has been home from Afghanistan for a year now, with that, he hasn't been employed a full year at the New job, so talking the FLMA, is what he will have to do, yet unpaid. We just know that we have to both be there for her I can't be there alone. We are scared, beyond words scared. But this is to save her right side of her brain from further damage, and to lower her risk from SUDE and give her a better quality of life.Ok, that's all can type, I can't say anything else, except. Thank you to all of our family and friends near and far for your love, care, support and prayer. Thank you for reading  and God Bless