Layla is a sweet and brave little four year old girl full of love, smiles and hugs. It is no coincidence that this courageous little sweetheart was born on Valentine’s Day. Anyone that knows Layla will tell you she always has a captive audience. She does not have a shy bone in her body and you can’t help but fall in love with her free spirit and exuberant personality.
Unfortunately, Layla suffers from seizures caused by a brain tumor. The type of tumor Layla has is very rare 1 in 200,000, called Hypothalamic Hamartoma. Thankfully this type of tumor is benign, but causes recurrent seizures and is disruptive to her everyday life as a child. This type of rare tumor found in children, causes gelastic seizures, also known as "gelastic epilepsy", this type of seizure which involves a sudden burst of energy, usually in the form of laughing or crying. This seizure usually occurs for no obvious reason and is uncontrollable.
Layla is blessed with two wonderful, loving and supportive parents. Lyndsay and Chris are very optimistic and positive parents who continue to remain strong through this journey of uncertainty. They see the glass as half full, never half empty. Even though this has been a stressful and daunting journey, they embrace it head on with the steadfast attitude of hope and faith. No parent is ever prepared to hear that their child suffers from any medical issues, especially to hear that your child has a brain tumor. This diagnosis has made Layla and her parents determined, ready and eager to give Layla the childhood that she deserves.
Lyndsay and Chris immediately went to numerous doctors, did their research, spoke with other parents who share this exact experience with Hypothalamic Hamartoma tumors. After an arduous venture of research, and the advice of experts on this exact tumor, Layla will undergo surgery to remove the tumor. Layla and her parents will soon travel from Pennsylvania to the Texas Children’s Hospital in Houston Texas for Layla’s surgery.
So far, this journey has warranted extensive time off from work for Chris and Lyndsay. Lyndsay, a dental hygienist, has taken a leave of absence without pay to care for Layla. Chris, who owns his own HVAC & plumbing business has also had to put a lot of jobs on hold during this trying time.
As with any illness, it can not only be devastating to have to come to grips with a child with a serious medical illness, but the financial aspects are also challenging. Insurance alone does not cover all of the expenses of Layla’s surgery as well as all of her doctor visits. Lyndsay and Chris not only have out-of-pocket medical expenses, but lost salary, and travel expenses as well.
Please help Layla’s parents with their much needed medical, travel and living expenses. One never knows in life what each day holds. No one ever plans on having catastrophic expenses due to the unexpected health issues of a loved one. A parent will go to the ends of the earth for their child. Any and all donations would be appreciated to help Layla’s parents offset their mounting medical and living expenses.
Thank you to everyone for your love and support of Layla. Please keep Layla and her family in your prayers.
https://bit.ly/Layla’s hope for HH journey
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Fundraising team: Laylas Friends & Family (3)
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