Kionnes fund

Hey all. Im setting up this fund for my tiny superhero Kionne.. on November 5th 2019 after collecting her from school she was complaining of headache?. By 5pm my baby had her first grand mal seizure.. after being rushed to hospital and having numerous test. Came back that she had a small tumour on her brain and that she had a rare form of epilepsy called Lennox Gasture Syndrome. This syndrome cannot be treated.she has seizured every day since.  We have tried numerous medicine and even CBD oils with little to no effect.
This syndrome has taken everything away from her and is slowly killing my baby. She is unable to walk, eat for herself and now her speech is going.she cannot be treated and there is no cure.. I’m comin to terms with my baby and the little time we have left with her.. all I want to do now is make her life as amazing as possible and one way is to get her on holiday with her sisters who she loves so much. I’ve never done anything like this before and not even sure we can raise anything as it’s hard times for everyone right now so all I ask is u donate what you can if you can and say a pray for my baby... love you all
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Donations 

  • Mandy Woollaston
    • £10 
    • 3 yrs
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Organizer

Keena Cespedes
Organizer
England

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