Donation protected
July of 2019 we took our daughter Kinsley 1 to Morgantown West Virginia for what we had thought was a bow leg . The doctor ordered a X-ray came into the Room and begin a few test. I'll never forget the look on his face as he sent us back out of the Room for some x-rays. Much to our surprise Kinsley was diagnosed with hip dysplasia. He started explaining to us that there will be multiple surgeries , followed by 3-6 months in a hip Spica cast (full body cast) , with another 6-8 weeks in a rhino harness which is braces. She will have to return for several appointments. The doctor told us if we leave her leg the way it was that she won't be able to walk by the time she's ten, and if we get surgery there's a chance that it doesn't go right either.( as in she won't be able to walk after wards) We only want to protect her and do right by her. But it is hard to make medical decisions for someone who can't speak for themselves. We decided to have the surgeries because it would give her a fighting chance. We could never begin to imagine what all would happen throughout the next year. As her parents we put a lot of the fault on ourselves. The doctors have reassured us that there is nothing we have done. When you have a disabled child the guilt is real. Kinsley will begin her 1st surgery on October 3rd 2019. The doctor tried to prep us for what would be going on with today's surgery , he says it would lease take 4 hours when she wakes up she will be very upset due to the anaesthesia so expect her to be very cranky and crying she will have a hip Spica cast which is a full body cast and then we will go over things after surgery. They gave her some medicine to make her drowsy to make it easier when they take her back for surgery. Your baby becomes a number on TV screen. I can never begin to tell you the feeling that I felt within. Hours are going by when you walk up to the desk every so often to ask the staff if there has been any word on your child they tell you everything's going good still in surgery.We needed so many more words in that moment. I look at her father in say it's been 6 hours ,7 hours, 8 hours, all of a sudden you start to panic. Finally after 9 long hours they call family for Kinsley . They ask us to go wait in this little Room as we see the doctor walk in , I remember my 1st words being please tell me my baby is alive. He begins to tell us that it was a lot more worse than they thought. During that 9 hours Kinsley had one of her ligaments cut to drop her hip forward so it would be in place they shortened her femur they (took a piece of bone out ) turn the femur 30 to 40ﾟ to the left. Then they placed a plate and 4 screws to hold the femur together they had to cut her pelvis to form a socket. And then they were able to build her hip at that point . Finally they were able to Put pins and screws In to hold all of the pieces together in hope that everything takes effect. Since This unbelievable day Kinsley Has had 3 more surgeries one more to go while we're hoping it Will only be One more. We want to an appointment at the end of October we were hoping to get our last surgery date but we did not her cartilage has not build-up to enough bone . So for now she will remain with her Plate and Screws In her leg we will have to go through several more appointments, X-rays Therapy. After being in a body cast for several months , 3 surgeries later many appointments braces long days and night these appointments need to go good. I could never begin to tell you the pain that I watched my baby be in . . As a parent it is so hard to see your child go thought something like this, knowing that you would do anything to take her pain away but there nothing you can do. Not only are we fighting this disability with our daughter Corona virus happened Kinsley can't get the virus due to her immune system Being down From all the surgeries it could potentially take her life. Kinsley disability as effect many things in her life down to her not even being able to wear a pair jeans , Set on a potty chair right , She can't keep up with other kids Which (breaks my baby's heart) , Big things like happen to home school my 2 children so we are not exposed to Corona virus, Other things like kinsley will be 3 in February and has yet to sleep through the night due to not being able to get comfortable she needs a better bed to suit her disability. We come to you today in hope that you may be able to help us with Kinsley during care and after care of surgeries . This has financially and emotionally affected our family in so many different ways. We would like to personally thank each and every person that is able to donate . If you are not able to do so please do not feel obligated. If you could share this for us that would do so much. Always the Blaha's ( please feel free to Communicate with us)
Organizer
Marcus Blaha
Organizer
Romney, WV