Kingston's Angels
Donation protected
My son told me, "Mom, it’s like I'm going on this journey to this dark place, but I don’t have to be afraid because I have this light with me… because God’s with me.” -June 10th before his Biopsy Operation.
He’s so brave, "our warrior", and yet, I feel broken and vulnerable! We love you so MUCH, King! ~Leslieann M. Mailo
KINGSTON's Timeline...
On October 2018, our son complained about his neck. The right side of his neck, lymph node area, was swollen and painful, and that he also had a headache. We took him in to see his doctor. Doc told us, it may be an infection and his lymph node is reacting to it. He prescribed antibiotics. A week later, his lymph node had slowly decreased its size. In January 2019, he noticed the lump again. After visiting his doctor, he again wanted to try the antibiotic. But he also insisted on getting labs, too.
In both, March and April, we were hit with bad news. Our insurance was no longer covered for imaging tests, and that we needed a referral. I scrambled to find out the reason and soon realized, we were automatically moved off of Tricare Select, and are now under Prime. We went from having my son's doctor, who've seen him since birth, to transferring to a different doctor, and on a different type of coverage. Meanwhile, my son's lymph node is swelling to the size of a baseball.
May 2019, we established our son with the new doctor. Finally, we start examinations, testings, and labs. Results weren't able to detect any type of issue. A surgeon doctor now wanted to take the lymph node out and do a biopsy. The procedure was my son's first ever surgery. On June 10, he took it like a champ and recovered well. Samples were sent off the island to a specialist in the mainland. We were happy and thought the tests would just come back clean.
A week later, on June 18th, would be the most misunderstood day ever in our lives. We sat there listening to the doctor say, our son had lymphoma. It really didn't sink in. Both the surgeon and the Oncologist confirmed that there are traces of cancer cells. But they needed to know more so it's being evaluated by specialists. We were told to wait again for more results, this time to find out what stage the cancer is at.
June 28th came, and we are now told, the type of lymphoma. His category of Lymphoma is diagnosed as, “T Cell Histiocyte Rich B Cell Lymphoma.” A rare type of cancer that usually appears in adults and make up less than 1% of lymphoma patients, in his age group. We're still numb in absorbing all this information. While my family continues to push our focus on Kingston, we seem to be crumbling along the way with all the changes we're experiencing.
Today, July 05, 2019. In reviewing our responsibilities for Kingston’s condition, we are faced with the realization that our financial standings will not cover his treatment plan, caretaking, and our normal cost of living expenses i.e. food, transportation costs, etc. We’ve never been through this type of situation and the effects are costly, both emotionally, and financially. In just the two months we've been going to the hospital (daily, almost five days a week), we've spent well over our monthly family budget of nine hundred. In Hawaii, prices are soaring through the roof.
The Oncologist said we're looking at six to eight months of treatment, I've estimated for the six-month time frame, projecting a feasible amount to buffer the costs of everything, mentioned below. I'm a retired U.S. Navy Veteran, on a 100% disability rating by the V.A., which means I can no longer work. My wife is a college student and caretaker of our three-year-old son Amadeus, our eleven-year-old son, Kingston, and our thirteen-year-old teenage daughter, Eden. I don't foresee myself making loans and expect to pay the banks while my family and I suffer throughout our hardship and well into Kingston's recovering stages, eight to nine months from now.
Your donations will help with our day-to-day expenses throughout the six to eight month period of treatment: for transportation (to & from the hospital about 40-42 miles total), food-drink while we're at the medical facility, medical equipment for in-house caretaking and special diet-nutritional foods for cancer patients. Moreover, It would also help cover our living expenses, while Kingston recovers. My wife and I have always believed in supporting others, we continue to do so regardless of our situation. We would like to thank you in advance for any amount you decide to donate. We are grateful, more importantly, you've become an Angel to our Kingston! #teamKingstonsAngels
He’s so brave, "our warrior", and yet, I feel broken and vulnerable! We love you so MUCH, King! ~Leslieann M. Mailo
KINGSTON's Timeline...
On October 2018, our son complained about his neck. The right side of his neck, lymph node area, was swollen and painful, and that he also had a headache. We took him in to see his doctor. Doc told us, it may be an infection and his lymph node is reacting to it. He prescribed antibiotics. A week later, his lymph node had slowly decreased its size. In January 2019, he noticed the lump again. After visiting his doctor, he again wanted to try the antibiotic. But he also insisted on getting labs, too.
In both, March and April, we were hit with bad news. Our insurance was no longer covered for imaging tests, and that we needed a referral. I scrambled to find out the reason and soon realized, we were automatically moved off of Tricare Select, and are now under Prime. We went from having my son's doctor, who've seen him since birth, to transferring to a different doctor, and on a different type of coverage. Meanwhile, my son's lymph node is swelling to the size of a baseball.
May 2019, we established our son with the new doctor. Finally, we start examinations, testings, and labs. Results weren't able to detect any type of issue. A surgeon doctor now wanted to take the lymph node out and do a biopsy. The procedure was my son's first ever surgery. On June 10, he took it like a champ and recovered well. Samples were sent off the island to a specialist in the mainland. We were happy and thought the tests would just come back clean.
A week later, on June 18th, would be the most misunderstood day ever in our lives. We sat there listening to the doctor say, our son had lymphoma. It really didn't sink in. Both the surgeon and the Oncologist confirmed that there are traces of cancer cells. But they needed to know more so it's being evaluated by specialists. We were told to wait again for more results, this time to find out what stage the cancer is at.
June 28th came, and we are now told, the type of lymphoma. His category of Lymphoma is diagnosed as, “T Cell Histiocyte Rich B Cell Lymphoma.” A rare type of cancer that usually appears in adults and make up less than 1% of lymphoma patients, in his age group. We're still numb in absorbing all this information. While my family continues to push our focus on Kingston, we seem to be crumbling along the way with all the changes we're experiencing.
Today, July 05, 2019. In reviewing our responsibilities for Kingston’s condition, we are faced with the realization that our financial standings will not cover his treatment plan, caretaking, and our normal cost of living expenses i.e. food, transportation costs, etc. We’ve never been through this type of situation and the effects are costly, both emotionally, and financially. In just the two months we've been going to the hospital (daily, almost five days a week), we've spent well over our monthly family budget of nine hundred. In Hawaii, prices are soaring through the roof.
The Oncologist said we're looking at six to eight months of treatment, I've estimated for the six-month time frame, projecting a feasible amount to buffer the costs of everything, mentioned below. I'm a retired U.S. Navy Veteran, on a 100% disability rating by the V.A., which means I can no longer work. My wife is a college student and caretaker of our three-year-old son Amadeus, our eleven-year-old son, Kingston, and our thirteen-year-old teenage daughter, Eden. I don't foresee myself making loans and expect to pay the banks while my family and I suffer throughout our hardship and well into Kingston's recovering stages, eight to nine months from now.
Your donations will help with our day-to-day expenses throughout the six to eight month period of treatment: for transportation (to & from the hospital about 40-42 miles total), food-drink while we're at the medical facility, medical equipment for in-house caretaking and special diet-nutritional foods for cancer patients. Moreover, It would also help cover our living expenses, while Kingston recovers. My wife and I have always believed in supporting others, we continue to do so regardless of our situation. We would like to thank you in advance for any amount you decide to donate. We are grateful, more importantly, you've become an Angel to our Kingston! #teamKingstonsAngels
Fundraising team: #teamKingstonsAngels (2)
Tony T Mailo
Organizer
Ewa Beach, HI
Leslie Jameson-Mailo
Team member
