Kiki Strong

On October 1, 2020, 10 year old Kiki Price went to complete routine labs because her Juvenile Arthritis had been flaring up. Shortly after having blood drawn, the Price family received a phone call from Kiki's rheumatologist telling them to take Kiki to the Emergency Room because her hemoglobin, platelets, and white blood cell count were dangerously low. That same afternoon, Kiki was transferred to a hospital in Orlando, where her specialists are - 2.5 hours away from her home. That night, the Price family was informed that Kiki was at high risk for infection and bleeding due to her low white blood counts. Thankfully, leukemia has been ruled out. Doctors have determined that Kiki has a gene mutation that makes her a poor metabolizer for one of her arthritis medications.  This drug is supposed to suppress the immune system enough to keep her arthritis in check, but, instead, because her body cannot metabolize it, it has built up in her system and completely shut down bone marrow production. She is also having an overactive inflammatory response, even though her immune system is suppressed.  Kiki has been undergoing treatment (daily blood transfusions, many medications, IV nutrition, hi-flow oxygen) ever since and is now in the PICU.  Because she also has Down syndrome, Kiki's body chemistry/ genes are different from a typical child, making her case quite unique, so doctors are consulting colleagues around the country to weigh in on her care.  
     Kiki is a sweet and feisty angel who has the most beautiful and contagious smile. She loves to meet people and encourage them with her hugs and compassionate words. She is an example of courage and strength. 
     This is a very scary time for the Price family as they watch their little girl fight to heal and recover. Doctors expect that it will take 8-12 weeks to resolve, and even after she leaves the hospital she will likely need weekly outpatient treatment. She is moving in the right direction, but this type of recovery takes time.  Let's come together as a community and assist with medical, food, housing and travel expenses for the Price family.  If you can, please donate to this fundraiser. If you're unable to make a donation, please consider sharing this page and keeping Kiki and her family in your prayers.  Thank you!!

"God is not unjust; he will not forget your work and the love you have shown him as you have helped his people and continue to help them."
Hebrews 6:10