kickinitwithKylie Medical Fund

I am Becky Guthrie, the mother of  Kylie Sierra Hosey.  Well this story all started back in June of 2016. Kylie started to have a little bit of jaw pain. Nothing major, it would go away within an hour or so. Then a week or so later, her left wrist began to hurt and it was swollen as well. She stated she didn't hit it or hurt it so I was stumped why it was swollen.  It was on the same side of the body as where her jaw was hurting, so I was wondering maybe if it could be a nerve issue.  We watched it and gave her Ibuprofen and it went away as well. Then another week or so later her right foot began to hurt. So my nerve theory went out the window. It did not last too long either. Then about a week or so both feet were hurting, and it got to where they were hurting so bad that the child could not even walk. She would just lay there and cry and Tylenol and Motrin was not working. I took her to her pediatrician at the beginning of August when the pain would not subside and her pediatrician sent us to the rheumatologist. She had every sign of having a type of Juvenile Rheumatoid Arthritis. So we started Naproxen, Folic Acid and Methotrexate injections. We did this from August to September and her pain seemed to be getting worse and worse and I felt so helpless. There was nothing I could do to help her. It broke my heart.  I have never seen a child in so much pain in all my life.  On October 5th, we went for our second Rheumatology appointment. They took labs like always and he was going to change her injections to Enbrel due to the fact she was having side effects from the Methotrexate, they also did a chest xray due to shortness of breath. The next day, on October 6th, Kylie's Rheumatologist called and said he wanted to talk about her labs. He said when her labs came back all her labs were normal, but the pathologist noticed something didn't look right about her cells so he had another test done. He told me at this point she had Leukemia and that explains everything she had been going through and why her pain had not gotten any better. He said I needed to take her to Children's Hospital and have her admitted, that he had reserved a bed for her already, and that we needed to get treatment started. So, to say the least, I didn't know if I was coming or going. As I left work to go get Kylie from school, which she had only been to for 3 weeks off and on due to her pain and not being able to walk, I was thinking to myself....how on earth do I tell a 9 year old that she has cancer. That my friends was the hardest thing I have ever had to do. As she gets admitted to the hospital and we have different swarms of people coming and going talking to us about so many different things, Kylie's now Oncologist walks in to talk to us and explain everything.  The Oncologist talked to us for 2.5 hours. Explained everything and more that we needed to know.  I was so overwelhmed with the wealth of information, the diagnosis, the procedures, the chemo medicines and what if this happens or what if that happens... Overwelming is an understatement. Kylie underwent surgery to have her IV port put in, a bone marrow biopsy and a lumbar puncture with a dose of chemo.  She also received 2 doses of chemo in her port after surgery.  Let me tell you, after her first round of chemo, the child had no more pain!!  Thank you Jesus!!! We were in the hopsital for 5 days and 4 nights.  Kylie spent her 10th birthday in the hopsital.  That little trooper has a great attitude.  She said "happy birthday to me"  with a little sarcasim.  She is funny like that.And that leads us to where we are today.  This is where we stand.....Kylie has had 6 rounds of chemo, 3 lumbar punctures, 1 blood transfusion, 2 bone marrow biopsies and 1 surgery during her first month. On November 3rd it was the end of our 29 day Induction phase (phase 1). We have received our next course of treatment as long as her MRD test (the reason for the bone marrow biopsy today) comes back negative. Kylie's Oncologist says he will be very surprised if it comes back positive. With that being said, phase 2 is our Consolidation/Isolation phase and it is 2 months long. This phase is more aggressive than the 1st phase. Kylie's blood counts will get very low and she will more than likely have more blood transfusions and she will be extremely susceptible to infections. So when I heard this it felt alot like October 6th when I found out she had Leukemia and admitted her to the hospital and was so overwelmed by all the information I received. Kylie's treatment is for 2 1/2 years.  The doctors said we have to make sure we get it all.  Her Oncologist is confident that she will get through this since the two test she has had done had a great outcome. Many people have asked what do you guys need, how can we help, let me know if there is anything we can do.  So here is a way you guys can help.  If you want to help you can please donate to Kylie's medical fund. 2 1/5 years of medical bills with add up real quick.  It does not matter how much you give, every bit is extremely appreciated as we guide Kyle through this unexpected journey in her life. Please keep on praying and supporting her. We will have good days and bad.   Thank you for all your thoughtfulness and support and God bless. #kickinitwithKylie #teamkylie #prayingforkylie