Kiaan who has Duchenne’s Muscular Dystrophy

Hi, my name is Sarah and I want to raise money to help a very special family who are very dear to our hearts.

Kiaan, who is now 5, had an abrupt start to life as he was born in an ambulance just off the motorway at 27 weeks. He had a substantial hole in his heart that meant he had keyhole heart surgery at 6 months of age. Kiaan has just been diagnosed with

Duchenne’s Muscular Dystrophy.

Duchenne muscular dystrophy (DMD) is a muscle wasting condition that causes progressive muscle weakness. It usually only affects boys and those assigned male at birth. It's caused by a lack of a protein called dystrophin.12

We are raising money because there is no cure at the moment in the UK and the only option available to us is in the US where they have an FDA approved gene therapy but it comes at a substantial cost ( in the millions)!

I would like to raise as much money as possible so they can look at various options available to help with his condition and make his life as comfortable and special as possible.

If you could please dig deep for this very special cause as it would make so much difference to a very special little boy and his amazing family!