Hi everyone! The little girl above who has that beautiful smile is my precious daughter who needs our help. Her name is Khloe, she's 11 years old and this isn't her first time having a rough year. At the age of five, she had a "near" drowning accident that the Lord allowed us to receive his miracle and save her. Some of you may remember when this incident occurred and we are beyond grateful for all the support we received.

Last September Khloe's health began to decline and we weren't sure what was going on. When her accident happened we became aware that she had PVL from birth which was then told to us to also be a TBI, she also developed epilepsy. From her accident, she has cognitive delay and several other things. Although Khloe had seizures that broke through we were able to maintain them through the years. The first thing that started to scare us in September was an incident at school, which we thought was a seizure, but her heart rate increased after receiving her emergency meds which shouldn't have caused that. As the episodes continued she began to become worse, and we were called in by her neurologist. We then discovered she had POTS, we had no idea what that was and had to do a lot of research. We went from doctor to doctor only to be given different stories and opinions. We finally reached a specialist in Baltimore, Maryland at John Hopkins who gave us hope with Khloe's diagnosis and began us on new meds. When we returned times changed drastically. Khloe began fainting, falling face forward to the ground, standing in the hallway at school like she was completely lost. At this time, the essential oil ammonia was briefly placed under her nose to arouse her, that's how we knew she was passing out. We went back into the hospital for an EEG, and we then captured an episode that was neither POTS nor epileptic. We then discovered some of her episodes were non-epileptic. Wow, another thing that we had no clue about. We sat down with the doctors to come up with a safety plan for her to return to school. The next day things spiraled out of control, she had back-to-back POTS and non-epileptic episodes the last one lasting for over 8 hours. We called EMS during the last one, Ativan was given, once at the hospital a nurse walked into Khloe's room and stated that what was occurring was behavioral. The thing is, this is not behavioral, that day started a new day for the rest of our lives. She was homebound for the remainder of the school year, which was two weeks. It absolutely killed her, her episodes became worse. She would pass out anywhere and everywhere. The non-epileptic were also becoming worse. We were told to do PT, OT and play therapy over the summer. She worked so hard over the summer and succeeded in doing these. She was evaluated for a wheelchair for long distances and school. While at PT and OT they were able to get her fitted for a helmet so she could go outside with friends, but also inside the house due to her hitting her head and now several bruises showing up. We were ready for school to start, wheelchair, helmet, this Mama advocated along with the principal, nurse and staff at Khloe's school and got her a 1:1 nurse. She was ready, this was her time. Her episodes began to become more aggressive and more frequent. Khloe wasn't making it to school, and we were unsure of what to do. At the time we thought we could do a rehab either inpatient or outpatient at Kennedy Krieger/John Hopkins to help manage Khloe's episodes. Unfortunately due to how severe they have gotten, we were turned down from the program. We returned to Baltimore in September where the neurologist witnessed the episodes, then again in October for her POTS specialist where more were witnessed. We were given different options to call and were told to obtain a CBT therapist that specializes in pediatrics. I called several places, the ones they recommended. Every single phone call was a no, our office, our hospital, and our program does not feel she is a right fit. Either she is too aggressive, too young or not suicidal.

Why am I babbling on? I'm saying all of this to tell you I've called countless places, with all no's. We had her neuropsych testing to see what our next step was for middle school. WE FOUND A PLACE!!! The program is in Los Angeles, California, it is called Re+Active. Families from across the United States have gone here and had incredible results. She will start with a month's journey. This will be participating in PT, OT, seeing a psychologist and doing Yoga. Khloe and I will fly out, rent a car, an apartment or a hotel that has a kitchen with a laundry room and make a life out there. As scary as all of this is, this is the YES we needed.

With this comes insurance?? That was the question of the two-hour virtual appointment we had. Unfortunately, we don't have medicare which is the one thing they do take, everything else is out of network. The deposit is 2,400 dollars. We have by the grace of God and the most amazing donors so far reached 1,395 dollars of that. Once we put down the deposit they will schedule our date to come out. The cost for the month is 11,000, yes you read that right. I know that is a lot of money, I am looking into fundraisers and also have called our insurance to see what we can do. During the month this money is due.

I need to explain in this go-fund that Khloe's quality of life has deteriorated, some of her episodes last a few seconds to minutes to hours. Her POTS has caused so much stress on her body to now cause these to happen. She has regressed so badly in the last year, it hurts my heart to witness this. During these non-epileptic episodes, she cries and begs for these to stop. She doesn't realize what has happened during them, she doesn't remember hitting, kicking or doing anything for that matter. As a mother all I want is help for my baby, help for her to get better. This sickness has done something to her, we are working so hard to control the POTS. Until we can help the non-epileptic episodes we can't control the POTS.

Some patients stay more than a month, but we will start there. Please I am not one to ask, but if you could find it in your heart to help us in any way that you can on this journey we would appreciate it. Since things have gotten worse in April, I have not been able to work so I can be on standby at any point to get Khloe from school or medical appointments. Things financially have not been the greatest but God has provided in every way. I know that this program would not have become available since we have searched high and low as it has. If you are unable to help, please we are asking for your prayers, we covet your prayers. Daily, we need your prayers. I know some do not like to give on go fund me. If you would like to find me on Facebook I could give you my other ways to send money! Thank you and God Bless!