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Khloe Rodriguez

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Hi, my name is Stefany, and I'm raising money for my niece Khloe Rodriguez. Khloe, our solecito (sunshine), was born on January 27th, 2022, sharing a birthday with her older sister! So cool! Khloe was recently diagnosed with a rare genetic condition called Rubinstein-Taybi syndrome ( RTS), affecting only 1 in 100,000 to 125,000 infants. The syndrome is characterized by broad thumbs and toes, short stature, distinctive facial features, and varying degrees of intellectual and physical disability. We don't know what challenges Khloe will face because her condition is so rare, and there isn't much information on treatment for her. We wish to raise funds to help her and the growing hospital bills and bring awareness to her condition. Please help us by donating or sharing.
-Thank you so much

Hola, mi nombre es Stefany y estoy recaudando dinero para mi sobrina Khloe Rodriguez. Khloe, nuestro solecito, nació el 27 de enero de 2022, ¡compartiendo cumpleaños con su hermana mayor! ¡Muy guay! Khloe fue diagnosticada recientemente con una condición genética rara llamada síndrome de Rubinstein-Taybi (RTS), que afecta solo a 1 de cada 100,000 a 125,000 bebés. El síndrome se caracteriza por pulgares y dedos de los pies anchos, baja estatura, rasgos faciales distintivos y diversos grados de discapacidad intelectual y física. No sabemos qué desafíos enfrentará Khloe porque su condición es muy rara y no hay mucha información sobre el tratamiento para ella. Por favor ayúdanos donando o compartiendo.
- Muchas Gracias
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    Organiser and beneficiary

    Stefany Hernandez
    Organiser
    Lehi, UT
    Paola Hernandez
    Beneficiary

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