Lucy's Legends

Welcome to my Gofundme page. I will be walking the 14 mile kiltwalk with my son Jack (10), my best friend Gill and my Godson Callum (11) along with Lucy's Legends! I am raising money for FND Hope, a charity that raises awareness of this crippling condition that not many people know much about. The inspiration behind this is 16 year old Lucy, who battles this, day in and day out. Here's her story...

Hi, my name's Lucy and when I was 14 I got diagnosed with FND, which stands for Functional Neurological Disorder. This happens when the brain and body fail to send and receive signals and messages which therefore results in physical symptoms. Symptoms of FND can vary from person to person, however from my personal experience I suffered from dissociative seizures, vocal tics, absent seizures, body locks, Functional gate, dystoria (pain and numbness in body,meaning I struggled to move at times). I started having absent seizures at 14, which gradually progressed into dissociative attacks. The best way to describe a dissociative attack is that there is NO damage or disruption done to the brain, it's just a case of the brain switching off and shutting itself down. It can be so confusing to understand, it's taken me and my family a while to adapt to life with FND. FND is life changing, yet many people don't know what it is! I was a perfectly healthy 14 year old girl and it all changed due to FND within the space of 2 years. FND has really changed my mindset and outlook on life! It's taught me to be grateful for what you have and never take advantage of the small things . My aim is to make people more aware of this condition as it consumes people's lives and I want to help people who have struggled just like me.

Want to join me in making a difference? I'm raising money to benefit FND Hope -UK, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

More information about FND Hope -UK: We promote awareness of FND through education and raising public understanding in England and Wales. We are dedicated to supporting those individuals affected with functional symptoms by advancing research into practical applications for the prevention, treatment and recovery of FND.

We are uniting patients and their families from the UK with leading researchers and advocates to pioneer a new standard of care for FND throughout the world.