- J
- M
After a recent bone marrow biopsy, my husband, Kevin Perdue was diagnosed with Severe Aplastic Anemia on February 4, 2019. SAA is a life threatening disease that causes bone marrow failure. He is currently at the Cleveland Clinic in Ohio waiting to start treatment. The doctor is confident that treatment will help his condition, but the long term objective is a bone marrow transplant.
His complications started November 23, 2018. After eating Thanksgiving dinner with his family, he was looking very pale. Kevin ended up in the ER that night and spent several days in the hospital at CAMC in Charleston, WV. After a CBC was done, the ER doctor stated that Kevin had Pancytopenia, which means that all blood levels are low. (Red, White & Platelets) He was admitted for further testing.
After being released from the hospital, Kevin has had many appointments at the CAMC Cancer Center in Charleston, WV. He received weekly blood and or platelete transfusions. He also had a bone marrow biopsy in December in Charleston and his marrow at that time appeared to be healthy.
Still having no answers for his condition, Kevin went to Morgantown on December 21st to find answers. He met with a rheumatologist and a dermatologist. The dermatologist did a skin biopsy and diagnosed Kevin with Eosinophilic Fachiitis. This is a rare autoimmune disorder that causes inflammation in the deepest layer of the skin. His skin tightened over the majority of his body. Kevin spent several days in the hospital at Ruby Memorial in Morgantown, WV. Eosinophilic Fachiitis is an autoimmune condition that may be related to the cause of the Severe Aplastic Anemia.
On January 26, 2019, Kevin was back in the ER in Charleston with a severe nose bleed. The following day he was admitted for an infection in his foot. After spending several days in the hospital, Kevin’s hematologist in Charleston recommended that he be transported to Cleveland Clinic.
This truly was a gift from God to be sent to the Cleveland Clinic. We see God’s amazing hand at work. The doctors and staff here are incredible and their knowledge of rare diseases is remarkable. After a couple months of living in constant fear of the unknown, Kevin now has a diagnosis and we can start moving forward.
Please keep Kevin and our family your prayers, we are hoping and trusting God that he is ultimately cured.
His complications started November 23, 2018. After eating Thanksgiving dinner with his family, he was looking very pale. Kevin ended up in the ER that night and spent several days in the hospital at CAMC in Charleston, WV. After a CBC was done, the ER doctor stated that Kevin had Pancytopenia, which means that all blood levels are low. (Red, White & Platelets) He was admitted for further testing.
After being released from the hospital, Kevin has had many appointments at the CAMC Cancer Center in Charleston, WV. He received weekly blood and or platelete transfusions. He also had a bone marrow biopsy in December in Charleston and his marrow at that time appeared to be healthy.
Still having no answers for his condition, Kevin went to Morgantown on December 21st to find answers. He met with a rheumatologist and a dermatologist. The dermatologist did a skin biopsy and diagnosed Kevin with Eosinophilic Fachiitis. This is a rare autoimmune disorder that causes inflammation in the deepest layer of the skin. His skin tightened over the majority of his body. Kevin spent several days in the hospital at Ruby Memorial in Morgantown, WV. Eosinophilic Fachiitis is an autoimmune condition that may be related to the cause of the Severe Aplastic Anemia.
On January 26, 2019, Kevin was back in the ER in Charleston with a severe nose bleed. The following day he was admitted for an infection in his foot. After spending several days in the hospital, Kevin’s hematologist in Charleston recommended that he be transported to Cleveland Clinic.
This truly was a gift from God to be sent to the Cleveland Clinic. We see God’s amazing hand at work. The doctors and staff here are incredible and their knowledge of rare diseases is remarkable. After a couple months of living in constant fear of the unknown, Kevin now has a diagnosis and we can start moving forward.
Please keep Kevin and our family your prayers, we are hoping and trusting God that he is ultimately cured.
