Kevin Kinnee II - Kevin's Krew ALS Fundraiser
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For all family, friends, teammates, loved ones and supporters of Kevin Kinnee.
On behalf of Kevin's family, it is with a heavy heart that we break the news to anyone unaware that our friend KJ has been diagnosed with ALS (Lou Gehrig's Disease). Amyotrophic Lateral Sclerosis. ALS is a progressive neurodegenerative disease that attacks cells in the brain and spinal cord that are needed to keep muscles moving, leading to muscle weakness and paralysis. Eventually, the disease robs a person of the ability to speak, eat, move, and even breathe. Kevin was diagnosed with this incurable, terminal disease in 2020, and his condition has started to deteriorate as his prognosis will take him from being active and athletic to not being able to walk, speak or take care of his daily needs.
As with most devastating diseases, the expenses related to this disease are out of control. Medical bills for an entire team of doctors; helpful devices, such as leg braces and a custom wheelchair (priced at anywhere from 12 to 16 thousand dollars) and even items for daily living, such as ramps to get in and out of the house and special speech-to-text software to aid in continuing to use a computer and communicate. We would like to try to take some of the stress off of KJ and his family, and help to defray these costs so that he and his Family can try to focus more on making memories during the time Kevin has left with us. Which is grossly inadequate given the progression of the disease to date.
Kevin and his family are currently downsizing to a ranch home due to the struggles with the stairs of their current family home and working to make sure it is compliant with all ADA (Americans with Disabilities Act) guidelines.
We understand that many Families are experiencing financial duress of their own during these uncertain times, but would appreciate any help you are able to give and I know KJ, His Wife and sons appreciate it very much. Thank you.
#livingwithals, #alsishorrible
On behalf of Kevin's family, it is with a heavy heart that we break the news to anyone unaware that our friend KJ has been diagnosed with ALS (Lou Gehrig's Disease). Amyotrophic Lateral Sclerosis. ALS is a progressive neurodegenerative disease that attacks cells in the brain and spinal cord that are needed to keep muscles moving, leading to muscle weakness and paralysis. Eventually, the disease robs a person of the ability to speak, eat, move, and even breathe. Kevin was diagnosed with this incurable, terminal disease in 2020, and his condition has started to deteriorate as his prognosis will take him from being active and athletic to not being able to walk, speak or take care of his daily needs.
As with most devastating diseases, the expenses related to this disease are out of control. Medical bills for an entire team of doctors; helpful devices, such as leg braces and a custom wheelchair (priced at anywhere from 12 to 16 thousand dollars) and even items for daily living, such as ramps to get in and out of the house and special speech-to-text software to aid in continuing to use a computer and communicate. We would like to try to take some of the stress off of KJ and his family, and help to defray these costs so that he and his Family can try to focus more on making memories during the time Kevin has left with us. Which is grossly inadequate given the progression of the disease to date.
Kevin and his family are currently downsizing to a ranch home due to the struggles with the stairs of their current family home and working to make sure it is compliant with all ADA (Americans with Disabilities Act) guidelines.
We understand that many Families are experiencing financial duress of their own during these uncertain times, but would appreciate any help you are able to give and I know KJ, His Wife and sons appreciate it very much. Thank you.
#livingwithals, #alsishorrible
Organizer and beneficiary
Brian Cross
Organizer
Greenwood, IN
Tamara Kinnee
Beneficiary