Kennedy's Disease Awareness

My name is Ralph Frederick Briones. I am from Northern California. Last year, I was diagnosed with Kennedy's Disease. Kennedy's Disease is a rare X-linked recessive genetic progressive neuro-muscular disease. Both the spinal and bulbar neurons are affected causing muscle weakness and wasting (atrophy) throughout the body which is most noticeable in the extremities (legs/arms), it is especially noticeable in the face and throat, and causes speech and swallowing difficulties, major muscle cramps as well as other symptoms. (KDA Website)





So why am I trying to raise money? Since it's an ultra rare disease that affects only 1 in 40, 000 males, it isn't at the top of the list of most research facilities. There are however, organizations like the Kennedy's Disease Association who fund research on a yearly basis. Becoming a member of the KDA has been such a blessing. The network and support system that exists has helped me uderstand the disease and given me the resources to live a healthy life.

We are closer than ever to find a viable treatment and cure. Although, we need your help and support so we can provide the neccessary funding for Kennedy's Disease research.  Each year, the Kennedy's Disease Association awards grants for research which is funded by donations and fundraisers like this.

The best thing about this fundraiser will be the awesome perks that will be added. We have autographped cookbooks, hot sauce and salsa from bay area local buisinesses, dance classes, martial arts classes, gift cards and autographed memorabilia from my personal collection. If you are also interested in donating item for perks, please contact me! 

I will be updating this page soon with new perks. Keep checking. Thank you all for your generosity. This means the world not only to me, but to all my brothers in the video and around the world. Let's find a cure for Kennedy's Disease.

All of the proceeds will go directly to the Kennedy's Disease Association.

Donations (0)

  • Vanessa Kenney 
    • $20 
    • 7 mos
  • Ramon Briones 
    • $50 
    • 7 mos
  • Dory Briones 
    • $50 
    • 7 mos
  • Agnes Ubalde 
    • $500 
    • 7 mos
  • Anonymous 
    • $5,000 
    • 18 mos

Organizer and beneficiary 

Fred Briones 
Organizer
Santa Clara, CA
Kennedy's Disease Association 
Beneficiary
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