The Big "C"-my journey
Anyone who knows me, knows how I don't like to ask for anything. Several people know my situation but many do not. I don't advertise or speak much about it, unless asked, because I always thought I can deal with it myself but the time has come that I realized that I cannot do this on my own that I need love and support from many,
My journey began March 2015 when I was diagnosed with a rare, very aggressive, cancer called Mucosal Melanoma. My tumor was removed and I opted not to do any treatment at that time. Sure enough about 21 months January 2017 later it metastasize to my liver. Being this is such a rare cancer and not many options for me, I decided to move forward with radiation and Immunotherapy. Radiation did kill the liver tumor but it metastasized yet again to my lymph nodes within a few months, while I was still doing Immunotherapy. I was so frustrated because I was feeling pretty good about it but obviously it wasn't working. My doctor told me about a clinical trial where they removed one of my tumors, they extract the good cells and multiply them by billions and re-inject them back into my system so all the good cells can fight the bad cell. This trial has saved many people and they are living cancer free, so I decided to do it. Well, I had several complication doing it. I was allergic to my own cells, I went into anaphylactic shock. I really thought my life was over at that moment. Needless to say, that treatment didn't work and I was now bald, and yet again it metastasized to more lymph nodes. As of last week, I have 4 more new tumors all in my liver. I have one that is so big that you can see it coming out of my stomach and that is one that is on my lymph node.
At this point, I am limited on options because there is not much history or knowledge in the Western World of medicine regarding my kind of cancer. I have seen several doctors and one out of state, and they all are pushing this cocktail of two Immunotherapies that causes major side effects. I have already been in and out of the hospital 15 times, almost died from one treatment, and none of them have worked or even slowed down the progression of this horrible disease, so I have opted not to do any treatment. This is a huge and scary decision for anyone but I feel at peace with it and my doctors think I have lost my mind. I have decide that I will continue to approach my disease with holistic alternatives. Insurance does not cover any of this..it is all out of pocket and it is pretty expensive to do but I feel this is where I am being guided. It costs me about $400 minimum a week...not including eating right, paying bills, car, rent, a 16 year daughters needs with no income since I haven't been able to work in 3 years due to the disease. There is a holistic Doctor in Clearwater that has helped cure a friend of cancer. If he can help me, the cost would be a minimum of $30,000. Presently, I am doing a machine called the Bemer. I would like to get one for my house because I need to do it 2 times a day but not able to right now because the machine costs $6500. I am doing high doses of Vitamin C with glutathione, Essiac tea, Medical Marijuana and a few supplements because that is all I was able to afford. However, I am now running out of money to continue and to add more holistic stuff that has shown beneficial to cancer patients. I am leaving this in Gods hands and trusting that he will heal me and will help to guide me to where and what I need to do to heal. I will not give up and I will prove the doctors wrong and for anyone who is reading this, who may be in this situation....Do Not give up, follow your heart, You Got this and God will not give up on you and so neither should you!!!!
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