This is my daughter, Rachel (Nasuti) Buyle.

Rachel needs a power wheelchair. Why?? Because Rachel has Epidermolysis Bullosa -recessive dystrophic. The sub-type of Epidermolysis Bullosa (EB) that Rachel was born with causes her skin to blister and/or to shear off due to friction. Everyday ordinary things can tear her skin, her mouth, her esophagus, and her eyes causing painful wounds. Eating, sleeping, walking, things that we take for granted can cause significant damage to her body. Most of Rachel's body is wrapped in dressings to keep her skin on, and to prevent trauma, and to cover wounds while they heal. Overtime, this repeating cycle of injury, healing, reinjurying has led to issues with mobility. Rachel currently has a power wheelchair that no longer meets her needs. Despite having Epidermolysis Bullosa, Rachel is very adventurous and does many things outdoors!

Rachel is very fortunate that her medical insurance covers many things for her, which has allowed her to live independently. The insurance company is willing to cover a power wheelchair for Rachel. However, the chair that they want her to have doesn't meet her needs. In fact, the chair has too many options that would be better suited to someone unable to walk or transfer independently out of the chair. The irony is that the wheelchair her insurance says they will cover is MORE EXPENSIVE than the chair that she'd prefer.

This is chair that insurance can cover:

This is the chair that Rachel knows would meet her needs. And truly who knows their own needs better than themselves?

This chair has tracks instead of wheels. These tracks can go through: sand, mud, dirt, gravel, grass, just to list a few things. This chair will allow Rachel to explore the great outdoors with her husband and her service dogs. This chair will allow Rachel to go outside with her elementary special education students during recess on the playground instead of limiting them to indoor recess because she is unable to safely walk on the playground area. This chair will allow Rachel to continue to be as independent as she is!

The funds raised will cover the cost of the power wheelchair and the modifications/accessories need for Rachel. One of the effects of Epidermolysis Bullosa is the onset of squamous cell carcinoma (skin cancer) from repeated skin trauma and healing. As a result, in June 2025, Rachel's left arm from just below her elbow was amputated to prevent the spread of the cancer in that area. Because of the amputation, Rachel will need some specific modifications to the wheelchair. To transport the wheelchair, a small covered towable trailer will also be needed.

Thank you for taking the time to read my daughter's story. I think this picture has the perfect motto for my daughter and this is why I'm doing this GoFundMe for her - so that she can be as unlimited as possible!