Keegans C3G Journey

I figured I would update this. My 6 year old baby boy Keegan was diagnosed with a rare Kidney Disorder called C3G. He has a mutation of Lupus and Diabetes as well so he's bound to have either or, or both as he gets older. Keegan has been in and out of the hospital since August multiple times. The first time he was here for almost two weeks.

We are currently back in the hospital anticipating a day to go home. My once 37lb little boy turned into my 68lb swollen boy. I finally told his doctor I was very concerned with the amount of fluid he was holding onto that they told us to come into the ER.

Keegan has a hard time doing day to day activities, including school. Which means one of us (parents) can't really hold down a job because the care for keegan is so unexpected. We are trying to get by on one income for 5 of us. Multiple trips to Syracuse. Stays in the hospital. All adds up. Not to mention I obviously want to be here as much as possible too so when I can call into work I do.

Point being. We are struggling to stay afloat. We appreciate all the donations thus far. We can't even put into words. Unfortunately it's not over.

Keegan only seems to get better when he has treatment he can only get from the hospital. I don't want him to go home and retain all this fluid again just to be back here in a few months. If the doctors can't come up with some sort of plan, we may be looking for a second opinion.

If anyone knows of any organizations that may help families like ours that would be amazing. Point me in that direction.

I am trying to do everything I can for our family. Work my butt off, pay the bills but also be the Mom that my kids need me to be.

Just pray. Pray for all of us. Please.

Thanks

Alysha and The Bleck Family