In August last year after his routine annual MRI they found what they thought to be a tumour in the same area as the original Medullablastoma tumour. This sounded alarm bells and within days he was under intensive screening, no child has survived a relapse from this type of cancer and any further treatments would cause such severe damage that Kayden’s life would not be one with quality.
With a Medullablastoma there is no real remission as it is a cancer that can lie dormant in the cerebral spinal fluid undetected. They still don’t know what effects will arise as Kayden is a pioneer of his treatment.
Kayden was with his mum Stacey and dad Andrew for his annual oncologist check-up when this devastating news was delivered. As Kayden was in the room they were unable to shield or protect him or even water down the words to make it easier for him to understand. He was facing his own mortality at the age of 14. He consoled his mum in the meeting and told Dr Nick he would beat this. His annual MRI was changed to one every six weeks right up until last month, they have now pushed them out to one every three months and no longer believe it is a tumour. They now believe it is some sort of cyst which will be closely monitored, but they cannot say for sure what it is.
Kayden did amazingly well and carried on living his life as if nothing has changed. Kayden has known nothing else but hospitals and medical terms and issues that affect his daily life. Chemo and Radiotherapy plus brain surgery have left Kayden with daily reminders of this and disabilities that affect him from hearing loss, vision impairment, growth failure, lung disease, renal issues, and short term memory loss to name a few. Now nearly 15 years old he is facing a new condition Primary Adrenal Insufficiency and this is a life threatening condition. So this funny and up beat boy will now have more restrictions on his life and more additional life time medications.
Last year Andrew was made redundant for a total of 12 months and this has put huge financial stress on the family. Andrew has recently returned to work and they are finally trying to get their finances back in order but this is a long road for them as trying to recover from 12 months without pay is extremely difficult. They survived this period with the help of their families and going without which when going through what they went through was very difficult, all they wanted to do was spoil their kids but could not afford to do anything with them. The other thing that happened was they had to cancel their trip to America which had the flights booked 2 years earlier and was to be a once in a lifetime trip. Now they have so much debt accumulated they will not be going any time soon and can’t see themselves ever being able to do this trip. They were forced to sell their beloved caravan which the whole family had spent two years rebuilding so they could have some cheap getaways.
Kayden is a very gracious and selfless boy and never asks for anything but his dream is to see America. Kayden’s sister Billie has also suffered. She has witnessed her older brother struggle through life and watched her parents cry and unwittingly become part of the hospital system herself as she was only one year old when Kayden was originally diagnosed. We would love to give Kayden that time to feel like life is fun and not all hospital appointments. We would love to give Billie, Stacey and Andrew some relief and a break too. With your help let’s help them enjoy some family time with no stress and time to make more happy memories. We know this isn’t the end of what Kayden will have to endure but sometimes a happy time can help heal heavy hearts. Let’s send them on that holiday of a life time.
Sadly we have been told it will b 2.000 dollars to insure kayde because of his life threatening diagnosis..plus 1 grand to go fund me they charge..not looking good for my precious boy....12 yrs of worry and crying...thanks so much for all who have donated. We are truely blessed by u all x
- Deborah Clarkson
- Shelley Russell
- James Lewis
- Chelsy Hansen
- Lesley Reti
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