We have set up this page to help our sister whose life has been turned upside down this last year after being diagnosed with a rare condition Functional Neurological Disorder (FND). She has battled so hard and we are imensly proud of how she has coped, unfortunately the treatment that katy needs to give her the best chance to improve her life is not available in this area and therefore hasn't been offered by the NHS. We as a family believe Katy deserves to have the best chance of getting better and want her to have access to the treatments that could improve her life and equipment that can support and make things easier. This has what has started the fundraising for Katy!
Please read on below for more details on Katy's journey to date....
Katy has spent the last 6 1/2 months in hospital. In addition to the FND, she also suffers from Chronic Hemiplaegic Migraines, Fibromyalgia and ME.
Katy has a vast amount of symptoms that are very debilitating and effect her quality of life. They have left her dependent on others and equipment for mobility, personal care and basic needs.
FND is listed as a rare condition and inpatient care is currently not accessible in the area. Walton have tried to set a new service up to offer Katy the care she needs. In December Katy was offered a placement on the Brain Injury Rehabilitation Unit in the Sid Watkins Building for a range of intense inpatient specialised FND care. In January Katy was informed funding was secured for this. 14th February Katy was devastated to be informed that this placement could no longer be offered to her, now or in the future. The plan for them to offer FND care in the near future for 4 patients ongoing has fallen through completely, letting Katy down but also other FND sufferers.
As a family who have seen Katy's battles, her positivity, bravery and determination during the challenges of her debilitating illnesses, we are so proud of how she has fought every day. Despite these continues challenges she has never given up. As a family we support Katy every step of the way and would like to help fundraise towards the cost of her care when she leaves hospital.
We have researched an FND specialist in London who recommends a range of outpatient services and equipment that will potentially help Katy prevail and continue her recovery in her home environment.
Some may be available on the NHS (dependant on waiting lists) but many we will need to access privately as they'll need to be regular and intense and so our fundraising journey begins to give Katy the best possible chances to recover!!!.
We have no doubt that Katy will do everything she can, as she always has, to fight her illnesses, to get to her optimum health. We can't wait to get her home with her family and help her continue on her difficult, but worthy road to recovery!
We thank everyone for the continued support for Katy and our Family, from friends, family, neighbours, colleagues and our community. It means so much!
We we will be arranging some fund raising events in the coming months, if anyone would like to donate on this page it would be very much appreciated.
For anyone wanting to know more about FND here's a little information .....
Functional Neurological Disorder (FND) is due to a problem with the functioning of the nervous system in a structurally normal brain. Symptoms are thought to derive from the brain’s inability to send and receive signals correctly. Considered to be multifactorial, which means many different factors can contribute to the development of the disorder. The symptoms are real and can cause impairment in quality of life that is similar to and in some aspects worse than other neurological conditions.
Symptoms can include Functional limb weakness, functional tremor, functional dystonia / spasm, blackouts / seizure attacks, sensory symptoms, functional walking problems, pain, cognitive word finding difficulty, tiredness / fatigue, slurred speech, swallowing difficulties, bladder symptoms, bowel symptoms, sleep problems, poor memory / concentration, disassociation, complex regional pain, dizziness, functional spasms and jerks, face spasms, and more.



Please read on below for more details on Katy's journey to date....
Katy has spent the last 6 1/2 months in hospital. In addition to the FND, she also suffers from Chronic Hemiplaegic Migraines, Fibromyalgia and ME.
Katy has a vast amount of symptoms that are very debilitating and effect her quality of life. They have left her dependent on others and equipment for mobility, personal care and basic needs.
FND is listed as a rare condition and inpatient care is currently not accessible in the area. Walton have tried to set a new service up to offer Katy the care she needs. In December Katy was offered a placement on the Brain Injury Rehabilitation Unit in the Sid Watkins Building for a range of intense inpatient specialised FND care. In January Katy was informed funding was secured for this. 14th February Katy was devastated to be informed that this placement could no longer be offered to her, now or in the future. The plan for them to offer FND care in the near future for 4 patients ongoing has fallen through completely, letting Katy down but also other FND sufferers.
As a family who have seen Katy's battles, her positivity, bravery and determination during the challenges of her debilitating illnesses, we are so proud of how she has fought every day. Despite these continues challenges she has never given up. As a family we support Katy every step of the way and would like to help fundraise towards the cost of her care when she leaves hospital.
We have researched an FND specialist in London who recommends a range of outpatient services and equipment that will potentially help Katy prevail and continue her recovery in her home environment.
Some may be available on the NHS (dependant on waiting lists) but many we will need to access privately as they'll need to be regular and intense and so our fundraising journey begins to give Katy the best possible chances to recover!!!.
We have no doubt that Katy will do everything she can, as she always has, to fight her illnesses, to get to her optimum health. We can't wait to get her home with her family and help her continue on her difficult, but worthy road to recovery!
We thank everyone for the continued support for Katy and our Family, from friends, family, neighbours, colleagues and our community. It means so much!
We we will be arranging some fund raising events in the coming months, if anyone would like to donate on this page it would be very much appreciated.
For anyone wanting to know more about FND here's a little information .....
Functional Neurological Disorder (FND) is due to a problem with the functioning of the nervous system in a structurally normal brain. Symptoms are thought to derive from the brain’s inability to send and receive signals correctly. Considered to be multifactorial, which means many different factors can contribute to the development of the disorder. The symptoms are real and can cause impairment in quality of life that is similar to and in some aspects worse than other neurological conditions.
Symptoms can include Functional limb weakness, functional tremor, functional dystonia / spasm, blackouts / seizure attacks, sensory symptoms, functional walking problems, pain, cognitive word finding difficulty, tiredness / fatigue, slurred speech, swallowing difficulties, bladder symptoms, bowel symptoms, sleep problems, poor memory / concentration, disassociation, complex regional pain, dizziness, functional spasms and jerks, face spasms, and more.
Organizer
Hannah Roberts
Organizer