Katja’s Battle with Ehlers Danlos Syndrome

My daughter Katja, age 41, mother of two beautiful girls Jayleen and MaKayla was recently diagnosed with EDS “Ehlers Danlos Syndrome”. After a year of numerous doctor visits/procedures and a failed surgery she is now bedridden. She is unable to spend quality time with her family and is unable to work and function in society. Due to her disability, she must rely on her daughters to assist her to perform basic daily tasks. EDS is a disease that emerges in the weakening of the body's 'connective tissues' which holds parts of the body together. This results in unstable joints that are easily damaged, in Katja’s case, this has caused Craniocervical Instability, whereby the ligaments holding Katja’s skull onto her spine are too weak. Katja has a structural compression of her brainstem, due to her inability to hold her head up resulting in an insufficient oxygen supply to her brain. This disease also weakens the blood vessels and the heart. If left untreated, this can be life-threatening. After an extensive search, our prayers were answered when a surgeon in Spain, Dr. Oliver has agreed to do this lifesaving surgery. Sadly, Katja’s insurance will not cover the surgery in Spain because it is out of country. Which means we will be paying out of pocket. The cost of the surgery and recovery is more than we as a family can afford. If you can help a mother save her child, we would greatly appreciate any donation. With your help, we have a shot at providing Katja with the surgery and follow up treatment that she needs to return to society as a functioning woman and a loving mother.