￼￼Why? Kathy is 49 years old and is slowly dying.
! How? Are the questions repeated by us all!
Many of you do not know what is going on and this is the hardest situation we have ever had to endure, even more difficult to write about. For those of you who do not know, our mom was diagnosed in late September 2017 with “a severe neurocognitive disorder due to probable Primary progressive aphasia”. I put that in quotes because all tests that were run came back negative and the Doctors could not give us a definite answer. It has been an extremely difficult experience watching someone you love loose themselves without even understanding the severity of what is occurring. There has been a significant decline, which led to her being hospitalized in early September 2017. I never in a million years thought i'd become my mothers caregiver. ￼￼
Anxiety, migraines and over sweeping were the first signs we noticed a few years ago. Never the less, she remained the same and continued acting like herself. Shortly after, she began forgetting why she would walk in a room. We would all laugh it off since her physician said she was going through menopause and that was a common symptom. Then came repeated stories, forgetting what she had just said; but she still seemed herself. As time went on she stuttered and found it difficult to form cohesive sentences so she spoke with her hands and sounds more than with words. Also her cognitive skills began to weaken, she can no longer read, write, or draw pictures much like a young child. Her doctor said it was only stress but things never got better. In fact, her health took a turn for the worse. That led to her being seen by a specialist in Tampa and being hospitalized for a week. They ran multiple tests from MRIS to performing a Spinal Tap. All came back negative, which led them to the diagnosis previously mentioned. It was a dead end for us.￼￼
That couldn’t be it, how can anyone accept that? We decided to take her to another doctor who confirmed what the first doctor said two years prior, it was toxin related and was destroying her brain. When the first doctor mentioned this to us, it led us to do extensive research and it all fit what our mother was going through perfectly. We had built a house a few years back and unfortunately it was not built properly. There were large amounts of black mold, mainly in my parent’s bathroom, caused by water damage in the walls. Mold produces mycotoxins, which can cause an array of health problems. Our mother is currently unable to care for herself, things she enjoyed doing she can no longer do. Everyday tasks such as putting on clothes, bathing, combing her hair or even brushing her teeth she is no longer able to do.
We were able to find a doctor who specializes in biotoxin illness, and there are a few more tests that need to be done in order to create a treatment plan for her. Because of all this, our resources have been exhausted and we are now reaching out for help. First and foremost, we need your support in prayer. If anyone has any experience in care taking, some advise would be greatly appreciated. I never in a million years thought I would become my mother’s caretaker. And lastly, any contributions that can be made towards her care would be a huge blessing. Thank you all for taking the time to view this page, God bless.
December 1, 2017 - Trouble recognizing items
January 6, 2018 - Asking mom about her brothers
First part of the goal is to cover Labs and initial consultation.
* First Round of Labs - Labs that qualify, to be drawn at local LabCorp. $3,000 (if interested I could supply a copy of all test done) There are about 14 panels.
* Second Round of Labs - Non-LabCorp Tests and initial consultation - $2500
Neuroquant MRI with interpretation
* To be done at CDI in Orlando - $800 billed and paid directly to them
* Total of $6,300 and if insurance pays for some of it it could go down to 4,050
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