Katelyn will require surgery to treat this condition. Surgery involves a craniotomy where they will cut a portion of her skull away to make room for her brain. The brain will be manipulated back up into its proper place and a durapatch will be placed. The dura patch is made of synthetic tissues that mimic brain tissues so her body will not reject it. She will undergo spinal cord decompression to assist with relieving the Syrinx. She will have activity restrictions during the 3 months post operatively. Katelyn will be out of school for a month. Katelyn will need her mom by her side so Sheri will be out of work for at least 6 weeks. Katelyn will need follow up treatment every 3 months for 2 years and then every 6 months after that.
The funds from this campaign will be used to support Katelyn and her family with travel (they leave for Stanford on March 26th), accommodations, high health insurance deductibles and medical expenses, daily living expenses (Katelyn's mother, Sheri, will be out of work for at least 6 weeks taking care of Katelyn), and follow-up care.
The last thing the Fox family should worry about is finances. Please consider making a contribution to support their journey to help Katelyn.
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