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Kanaloa's liver transplant

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Aloha family and friends of Kama and I. We are asking for your support and donations as our 4 MONTH OLD BABY KANALOA has been transported to LUCILE PACKARD CHILDRENS HOSPITAL in SAN FRANCISCO ,CALIFORNIA for a liver transplant. Kanaloa was born with a mild jaundice and at 4 wks of age he seemed to have gotten better or less yellow with his bilirubin count at 9.2 well as time went on after the first lab chkup I started to notice at 7wks of age that he was now getting worse. So doctors and I decided to redo his labs, at this time it he had an elevated score of 15 for liver enzymes he was then transfered to Kapiolani for elevated liver enzymes. While in kapiolani they ran test on him, which he had a UTI at the age of 2 months which is very rare for babies at this age. We ran test on the urine which tested positive for CMV. Due to a high bilirubin count and high liver enzymes kanaloa started to have gray stools which shows the doctors that he has some kind of liver function problems. At the age of 2 1\2 months kanaloa had a liver biopsy which stained positive for EBV this now showed the doctors that baby had 2 diseases running in his blood and organ system. So doctors began to treat him for those illnesses. On Feb 27th we got discharged and went back home and was told we would have monthly chkups with the liver doctor and infectious diseases doctor. So we traveled to Oahu 2 times after discharge for followups. Being told that at the age of 6-9 months babies liver and jaundice will either get better or worse. Well on April 25th I took baby ER because I noticed his abdomen was getting bigger for his little 4 month old body and his color got worse or more yellowish greenish at this point I knew something was definetly not right. I asked the ER doctor if we could redo his labs which now is at 28 with a high bilirubin. I immediately asked for transfer to kapiolani within 48 hours they ran more test and had then told me that my babies liver is failing. This is beyond the worst heartaching news I've ever want to recieve. At this point an time this is taking a big toll on my family and I am asking for your support and donations for medical and financial needs for baby and my family. Please I'll ask for your continued support and prayers for my baby and my family. And I'll keep you folks updated on babies status.
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Donations 

  • Ioane kaaihue
    • $250
    • 8 yrs
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Organizer

Luana Agliam
Organizer
Kaunakakai, HI

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