Kai & Ura's fight with INAD

Our INAD Journey: Help Us Make a Difference

Hey y'all, we are Alexi and Cruise Cheramie. We're the proud parents to these two, Kai (2yo) and Ura (4mo). Today, I want to share our family's journey of raising awareness about INAD.

Kai was born healthy and reached every milestone until around his first birthday, we noticed a heartbreaking regression in his development. Countless doctor's appointments and tests led us to a diagnosis that shook our world - INAD (Infantile Neuroaxonal Dystrophy).

INAD is a rare and devastating neurological disease that affects the nervous system, causing progressive deterioration in motor and cognitive function. There is currently no cure for this disease, and it presents immense challenges for both Kai and Ura. Sadly, the life expectancy of children with INAD is 5-10 years.

When we received Kai's diagnosis, I was 38 weeks pregnant with Ura and despite being born perfect, just a month later, our worst fears were confirmed when Ura was also diagnosed with this rare condition.

Now, our family faces a constant battle against this disease. Our days are filled with medical appointments, therapies, and the need for specialized equipment to care for our boys and ensure they have the best quality of life possible.

We've set up a donation page to help cover the overwhelming costs of medical bills, equipment, and therapies. Every contribution, no matter the size, makes a difference in our family's life and our mission to raise awareness about INAD.

Please consider donating and sharing our story. Together, we can make a meaningful impact in the fight against INAD and support our incredible sons, Kai and Ura.

Thank you for your love, support, and for being a part of our journey. We are incredibly grateful for each and every one of you.