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Thank you for visiting my story about my son Paxton Lee Mayer. This was my first pregnancy, and at my 20 week ultra sound Paxton was diagnosed with right multi-cystic dysplastic kidney meaning his kidney would never be functioning, leaving the left kidney to be the only functioning one. Fast forward to my delivery, my water broke 4 weeks early and I delivered to what I thought was going to be a healthy baby boy (minus 1 kidney). Next thing I knew the full NICU team was rushing to my room, and all I can hear was everyone saying "Do you see this thing sticking out of his belly?" The next thing I knew they had him in the incubator and were trasferring him to the NICU. After Paxton was admitted to the NICU, the doctors finally figured out what was sticking out of his belly. They realized he had a rare form of "covered bladder exstrophy". http://www.urologyhealth.org/urology/index.cfm?article=91
There is only 10 known cases of this rare form of the bladder exstrophy condition throughout the country. While in the NICU, doctors also discovered he had 13 ribs, heart murmur, irregular heartbeat, left hip dysplasia (which he will need surgery to fix in the future). After multiple CT scans, MRI's, EKG's, he spent 21 days in the NICU, making his medical bills total over a million dollars. I have insurance, but have a large deductible and don't qualify for state assistance like Medicaid or medical. On January 26th, 2015 we are having to fly to Seattle, Washington to have major surgery on his bladder to hopefully correct the problem, but this is one of many surgeries he will endure. Any donations at this time would greatly help with medical and travel expenses. Thank you in advance for taking the time to read my story and for donations that were made.