Quick info: I am raising money for my sister Jodie's Chronic Lyme disease treatment. We are aiming to raise around £20,000 to cover part of her treatment costs over the next 18 months at the - however if we raise more it means Jodie can have a more comprehensive treatment for her complex condition (e.g. can attend treatment abroad costing a estimating a total of around £30,0000). If Jodie gets well sooner any funds left over will be donated to the Caudwell Lyme Charity who are campaigning to open a NHS Lyme specialist centre. Scroll below for treatment details.
Jodie has always been bubbly, high-spirited and ambitious, but over the last few years, the underlying suffering and illness she has been struggling with has caused tremendous sadness for our family.
After 6 years of hurdles and challenges, misdiagnoses and tests, we finally now know the enemy we are facing. Jodie has been diagnosed with Chronic Lyme disease including Neuroborreliosis, Bartonella and Babesia co-infections along with Chronic Inflammatory Response Syndrome. If there was increased awareness and resources directed towards the disease, her diagnosis may have come a lot sooner. And her treatment may have been a lot simpler.
Jodie is only 25 years old, but has been housebound & mostly bed bound for the past year, needing 24-hour care. She has an extensive list of debilitating physical and neurological symptoms, relying on her parents and aids for her everyday living.
Lyme disease is a bacterial infection typically transmitted by ticks. It can affect any organ of the body, including the brain and nervous system, muscles and joints, the heart and the gut. If left undetected it can prove extremely serious, and potentially fatal.
Jodie's Lyme has passed her blood brain barrier, impacting her different body systems and causing a severely depressed immune system. Without appropriate treatment fast, Jodie could develop life-threatening complications.
Unfortunately there is not enough research into Chronic Lyme disease and their co-infections to establish an effective treatment protocol under the current U.K. medical system (see our Treatment page on website for more details).
This is why we need your help.
Fortunately, despite the lack of treatment options within the NHS, there successfully trialed private options. Our aim is to make these options available to Jodie.
My parents and Jodie have spent around £13,000 collectively over the past few years navigating her rapidly declining health. As a lot of businesses have experienced, my parents have also had to deal with drastic financial loss during these troubling times. We are hoping you can help us to raise funds to supplement the costs for Jodie's Lyme treatment undertaken by my parents.
The sooner we can access treatment for Jodie, the more positive the outcome will be.
Seeing this debilitating disease progressively break down the same beautiful and loving sister I drew my own strength from has broken my heart.
As well as getting Jodie treatment, it is also our wish that our website and Jodie's story raises awareness of this devastating disease, aiding positive change and movements towards a standard long-term treatment in the future within our state medical system.
I believe with our collective effort we can provide Jodie the treatment she needs, and bring Jodie back to her full vibrant self.
What will Jodie use these funds for?
She will be using these funds to supplement the cost of her treatment with the London Lyme Clinic , and also hopes to raise enough money to attend Neomed Clinic in Cyprus for their lyme detox protocol next year. You can read more about her treatment details on our website .
The more funds we raise the more comprehensive Jodie's treatment protocol will be for a higher chance of sustained remission. Her total treatment will span over two years. If Jodie gets well sooner, and has funds left ove, they will be donated to Caudwell Lyme Charity , who are raising money for research into Lyme treatment, with the hope that options will become available within the UK.
Thank you for reading, if you would like to learn more about chronic lyme please head to our website
** If anyone would like to make donations via paypal instead please send to email@example.com - we will update any donations made this way onto the Update section **
Friday 20th Nov
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