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Owen's medical fund

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Owen is a vibrant 1st grader at Central Valley. He is six years old. He was born with several congenital and genetic anomalies. Owen spent many of his first years in and out of Children’s Hospital of Pittsburgh. He has complete heart block and requires a pacemaker to sustain life. He also has Craniosynostosis and Chiari brain malformation type I. In July of 2013 he was diagnosed with a genetic disorder Primary Hyperoxaluria. (to learn more….go to OHF.org) He carries two of the gene defects. One of the gene defects is therapy resistant and one is not.  The only cure for the genetic disorder is a transplant. As of January it was determined that Owen will require a transplant of the liver. In the past four months Owen has required many surgeries. In October he had neurosurgery to remove pressure off of the brain. In November he had surgery to remove a 3cm kidney stone. In December he had surgery to replace his pacemaker. Our family thought after his latest surgery we would be in the clear. Only to receive the news that at this time Owen will require the Liver transplant. My grandson is the bravest little boy and could use your prayers. Our family asks for your support at this time.
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    Organizer

    Patti Hurley
    Organizer
    Center Township, PA

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