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Hi everyone,
I am asking for the help of my friends and
family today, so that one day soon I can have
the opportunity to live a life that is free from
crippling pain and debilitating fatigue.
I was diagnose with CFS/FMS over ten years
ago now.
For those of you who do not know what this
terrible autoimmune disease is, please let me
explain……
CFS/ Chronic Fatigue Syndrome - is an
autoimmune disorder of the Neuroendocrine
System.
Autoimmunity - is when your Immune System mistakenly identifies a part of your body as a
foreign invader, like a virus it needs to get rid
of. Your own body triggers its inflammatory
process and sends specialized cells to destroy the target and begin the healing process.
FMS/ Fibromyalgia - is a musculoskeletal
condition that causes widespread CHRONIC
PAIN among other symptoms. This pain can
show up in many ways and in different parts
of the body. The most common form of pain
is stabbing pain throughout your entire body. If you are lucky you can experience a duller form of continuous aching. It can be localized to oneor more areas of the body or it can seem to
cluster around multiple ‘Pain Centers’.
CFS/FMS for me has been a combination of
extreme, extreme pain. Mainly from the hips
down.
I wake up every single morning with the lower
half of my body feeling like I have been hit by
a truck. The pain is so intense that my legs feel like they are pulsating with stabbing pains that don’t stop. Like when you have the flu and your body aches and throbs.
Except this IS NOT the flu for me. This is the
reality of my everyday life. The only form of
pain control I have is to take medication.
Heavy pain medication and anti inflammatories. I sit with the pain for several hours, unable to move.
On top of the pain in my legs I also suffer
from muscle spasms, brain fog, chronic
migraines, depression, trouble sleeping (which
intensifies the pain) and extreme unbearable
exhaustion and fatigue.
This illness has taken so much from me……
In my early twenties I went to College to
become a Dental Assistant. Long before I
developed my health issues.
I felt so blessed to find a job In my new career right away. I had so many hopes and dreams
of what my bright future would hold for me.
The one desire that I wanted most in life, and
had dreamed of since childhood was to get
married and have children.
Not only did I never get married……
I also was unable to have children.
In my early thirties I had met the man I
wanted to settle down with. We both eagerly wanted children and decided to start trying
right away. We were already engaged and
knew we wanted to be together.
Years and years went by and failed pregnancy
after failed pregnancy. Not only did I loose
my relationship but I also lost my dream of ever
having a baby.
I have had too many miscarriages that one
woman’s heart should ever have to endure.
Watching my friends and family get married
and have babies. Wondering what was wrong with me. Why I couldn’t have this? But my
body was too sick to hold a baby.
I have lost so so much……
I have lost my career, relationships, babies, my ability to care for myself completely, my
independence, friends and even family.
All I really want in this life is to be able to LIVE.
To be able to go to work. Make a paycheque. Get my own apartment. HAVE MY HEALTH.
To not have to hide being sick. To not have to
depend on others for the necessities in life.
Today finally, for the first time since being
diagnosed. This is a possibility for me!!!
I have discovered an American Physician
named Jacob Teitelbaum who currently sees
patients where he lives in Hawaii.
He is a world renound doctor who deals with
Chronic Fatigue Syndrome and Fibromyalgia.
He has written ten books on Chronic Fatigue
and Fibromyalgia. He himself, while studying
to be a physician experienced fully what this
awful disease can do. He was forced to drop
out of college and became homeless.
Fast forward forty years. Dr. Teitelbaum has
devoted his career to studying this illness and
understanding it fully. There has not been one
patient he has not been able to help.
Since being diagnosed I have probably seen
over one hundred doctors. Not even ONE of
them has been able to help me get better.
They write me prescriptions for pain
medication and antidepressants. Hoping I will go away, and stop asking questions that they
don’t know the answers to.
I have been told by an internal medicine
doctor that this is what my life looks like
moving forward. So I should get used to it.
I NEVER got used to it. And I NEVER stopped
searching……
When I am better, and living the life that I
have only dreamed of……
I want to help one person. One person a year. Come up with the money they need to see
Jacob Teitelbaum and have their life and health back.
This illness causes so, so much suffering. And
most of us who have been diagnosed not only suffer, but SUFFER IN SILENCE.
This Autoimmune Disease, like so many others,doesn’t make us look sick.
From outside appearances most of us actually
look fine. We can even look beautiful, and
healthy, and even fit.
This is the cruel part.
I have had so many people in my life who don’tbelieve me……
PAIN CANNOT be SEEN.
Only felt.
Thank you in advance,
To all of you that are able to help me. And to all of you who cannot. I wish nothing but
blessings and health to you and your loved
ones.
xoxoxo. Carley.

