When this precious little boy on his dad's shoulders was a month old, hid dad's kidneys shut down. The doctors don't know for sure, but the cause is believed to go back to a strep infection he had when was about 12 years old. It affected his kidneys at the time time, was treated rigorously, and appeared to be taken care of.
Justin was 28 years old when his kidneys shut down. After many months of applying and reapplying and all the paperwork that goes with that process, he was finally approved for social security disability. Because he was so young, without years and years of contributing to social security, his allotted monthly payment is minuscule. For some time, 20% of the tiny allotment went to pay for his Part B Medicare. Because he is in end-stage renal disease, he was able to qualify for Medicaid which eventually began covering his Part B Medicare premium and his Rx plan premium.
Justin has been on different types of dialysis for almost 4 years. He's been in and out of the hospital many times for things ranging from blown ports to seizures, and very recently for a clotted fistula. After a couple of years of working with a transplant team in Kansas City, Mo (Justin lives in Rogersville, Mo, about 3 hours from Kansas City),and many medical and dental procedures to get his body ready, he was approved to go on the transplant list July 11, 2018. His EPTS (estimated post transplant survival) score is 6%, a very low score (low is good) which puts him very high on the list. It is estimated that a viable, matching kidney, will be available within 6 months from that date. The surgery itself will be primarily covered by his Medicare, leaving out-of-pocket expenses for drugs Medicare doesn't cover. Justin's major expenses will start post transplant. He and a caregiver will be required to take up residence close the the hospital for about 30 days post transplant. After the 1st month, he will be required to make numerous trips back to KC for checkups. He will be allowed to stay on social security disability 3 years post transplant. It is unclear as to whether this will also apply to his Medicaid that pays for his medicines, since he will no longer be in end-stage renal disease. And his anti-rejection medicines will keep him alive after transplant. The hospital advised that he start a fundraising campaign before transplant, assuring him that we would need it. Part of the approval process was convincing the committee that this would be done for him, as part of the approval criteria was for the committee to believe he would have the finances to follow through with all post transplant medicines and trips for checkups. The hospital advised that for stress and blood pressure reasons, he should be involved as little as possible with the fundraising process. As his mother, I ask for your help that he will desperately need with post transplant expenses.
If you have type A or O blood type and would consider being a donor for Justin, Please contact his coordinator, Sharon McCathy at [phone redacted] (0). The surgery for surgery removal would be required to take place at Saint Luke's Hospital in Kansas City, Mo, and would be covered by Justin's Medicare. We would use this fund to help with your out-of -pocket expenses.
If you have another blood type and would consider being a donor for some else please register online with National Kidney Registry.
Thank you and God bless you.
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