Up until October 29, 2014, she was your typical 9 year old, full of energy and vigor. She would play from sun up to sun down during the summer. She is a child who would always be on the lookout for any kids that would be willing to play with her. She loves people she like to share her toys and games even yummy candies with kids.
She love to tell jokes and make people laugh with her.
It is hard to imagine her not walking, not running , not biking, and not going to the YMCA mini-gym or the pool anymore. Since she was 5 years old she was a champion in Mario games. She is obsessed with mermaids to a degree that she started dreaming of becoming a mermaid. She was so excited anytime she was in the pool. Now, the reality is, the brain tumor has done horrible things to her body but is unsuccessful in killing her happy spirit. She still tell jokes to Drs. And nurses and offer them chocolate and gum.
Mary-Lynn never complained of recurring headaches, weakness, limping nor vision deterioration that were noticed by parents, that is why nobody knew how seriously rapid the tumor was developing in her brain. In September of 2014 she was fine. In October she started falling at school and at home. All we know now is that her family and friends are heart-broken not hearing her yell: "can I play with you if it's alright?" ...
In our neighborhood, in her school, in family gatherings, "at least for a little bit". She had been hospitalized since the day she was diagnosed, from London, Ontario (Children's Hospital of Western Ontario) to Toronto (The Hospital for Sick Children, The Princess Margaret Hospital, and Bloorview Hospital). Her parents has taken time off work to be with her in Toronto, away from home. Mary-Lynn had six weeks of radiation hoping that after she is "the bug will be killed".
Now, she often cries remembering her strong self:
Why did this happen to me!!!?
Why didn't happen to to you (parents)?
I don't deserve this... This is not fair!
When I am ganna be walking again?
Is she running out of time? The doctors have given her few months. We try not to think in those terms and instead try to focus on her now and what she needs. Maybe its foolhardy to ask for a cure within this time frame but if that's what everybody needs to stay positive, then so be it. We can only hope that she would be able to play with her friends again.
ince there is no cure till now for DIPG, the hope is with the trial medication phase 1 that Doctors offered her in the USA. Her parents will knock on all doors that may have cure for her.
Mary-Lynn deserves to live not to die. In jesus name and powers she will live because he is still able to make miracles.
Thanks for everyone of you who considers helping Mary-Lynn the mermaid.
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