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This is Jasmine Hok , she was diagnosed with a very rare genetic disease called AADC (amino acid decarboxylase deficiency ), there are only about 200 people diagnosed with this  disease.  She is only able to  eat through feeding tube in her stomach.  She is not able to sit, talk, crawl, stand, hold anything in her hands or even roll on her side by herself. Jasmine has episodes of oculogyric crisis, upward eye rolling which lasts for 20-60 minutes, followed by dystonia which are stiff seizure like movements that can last over several hours. She has difficulty sleeping and often has crying spells for no apparent reason.

Jasmine is growing into a lovely girl and we want to give her as much of a normal life that we can. We want her to be able to learn as much as she can as she grows older so she can participate in her own care. As she grows, her needs are also growing. Her care is getting more difficult for us. Jasmine requires frequent trips to the hospital, clinics, school, physical therapy and it is difficult to be able to support all the services she requires with the income we can provide.

We are asking for your support towards Jasmine's future care. She needs a handicapped van with a ramp so that we can take her to her appointments at the Children's Hospital and other centers that provide her care.  She also needs some wheelchair accessible lifts to allow her wheelchair to be transported up and down stairs.  These important things will make a huge difference in being able to provide her the care that she needs now and in the future.

Any help that you can give will be greatly appreciated as well as your prayers to her future recovery. Thank you for taking the time to read about our journey and the hopes we have for our only child. We will keep your updated on Jasmine's journey .

Thank you for caring!

Donations

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  • Anonymous 
    • $200 
    • 26 mos
  • Chao chun Tseng 
    • $100 
    • 26 mos
  • ching hsia huang 
    • $1,000 
    • 26 mos
  • Hsin-Min Chung 
    • $50 
    • 26 mos
  • NING ZHOU 
    • $50 
    • 26 mos
See all

Organizer

Seila Hok 
Organizer
Surrey, BC
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