Hi, my name is Ryder Chambers! I am 6 years old and have a rare condition called AMC, which stands for Arthrogryposis Multiplex Congenita. This condition causes my muscles, tendons, and connective tissues to not develop correctly, making my joints stiff and unable to bend the way other kids’ joints do. For example, my arms and legs stay in fixed positions, so I need a lot of extra help to move, play, and do everyday things!

AMC has also severely affected my spine and greatly limits many parts of my life — including something as simple as sitting comfortably with my family and friends. Soon, I will begin an important journey to help fix my back and improve my overall quality of life.

On January 5th, I will be staying with my longtime friends at Scottish Rite Hospital in Dallas for 2-3 weeks to have a procedure called a halo traction. The halo traction works by using a metal ring (called a halo) that is gently attached to my skull with pins. The halo connects to a pulley system with gradually increasing weights that slowly stretch and straighten my spine.

This step is incredibly important because it will make the big spinal surgery I’ll have when I’m older more effective by bringing my spine closer to its ideal position. In the meantime, it will also help me sit up better, see more of the world around me, and participate in more activities.

Scottish Rite is nearly two hours from my home, family, and friends, and I must have someone with me at all times. My mommy is a college student and normally works, but she won’t be able to work during this time because I will need her constantly. I also have a 1-year-old little sister who needs my mommy too. This means lots of long drives, long days, and very little rest for my mommy and my Gigi, who will also be helping care for us.

Thank you so much for caring about me and my family and for supporting us during this important time. Your generosity will help my mommy and Gigi stay by my side, cover gas and travel expenses, and afford food and bills while they are unable to work. Every bit of support truly means the world to us.

P.S. Even if you can’t donate, sharing my story means so much to us.