Support for Reggie

Hello,

My name is Ria, our beautiful son, Reggie who is just 1 years old, is due to have a bone marrow transplant on the 22nd of April at Great Ormond Street Hospital (London) in which we will remain in the hospital for multiple months until he is well enough to leave. Our little family live on the Isle of Wight, we are asking for help to support us whilst we support our son through chemotherapy and a bone marrow transplant.

I never like to ask for help but this is our last resort, Reggie needs his dad and I need my partner there for support during such a hard time.

For those who don’t know Reggie, he has an auto immune disease called Chronic Granulomatous disease, CGD is a genetic disorder in which white blood cells are unable to kill certain types of bacteria and fungi this means people that have CGD have an immune system that doesn’t work properly, therefore leaving them highly vulnerable and susceptible to infection which can turn life threatening very quickly.

A bone marrow transplant at this current time is the only ‘cure’ for CGD.

Reggie will have a Hickman line placed in through the jugular vein to undergo a harsh round of chemotherapy before he will have his BMT, he has recently had a PEG line fitted (feeding tube) through his stomach which allows him to be fed directly to the stomach in case he suffers symptoms during chemotherapy.

I am asking anybody and everybody to help towards any costs while we support our little boy and am extremely grateful and thankful for anything given x