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Joyful Jaymie's Heart Operation
Wishes do come true in God’s perfect time.
It was an answered prayer on October 16, 2015 when our Joyful Jaymie came to this world, I was lucky to see her in the delivery room. We were very happy seeing our little bundle of joy for the first time after nine long months of waiting and welcome her with so much love and excitement, spreading the exciting news and posing for photos.
The reality has come the following day, October 17, 2015 her Doctor told us that they are seeing physical signs of Down Syndrome. She has flat facial features, with a small, upward slant to the eyes, single deep crease across the center of the palm, fifth finger has only one flexion furrow instead of two, extra space between the big toe and the second toe and enlarged tongue that tends to stick out. It was terrifying hearing the news and pinched ourselves as if we were having a dream.
Doctor referred her to other specialist to do series of test. Our joyful Jaymie has also suffered from Hypoglycemia that’s why we need to leave her in NICU for 3 more days.
We have done tests with the following pedia:
ENT Pedia - wherein she failed her hearing test twice. At first, both ears failed and on the second test her left ear failed. It was on her second month (third test) when she finally passed the hearing test.
Endocrinologist Pedia - wherein she had her first Thyroid test on December 17, 2015. Her TSH was within borderline so it was advice to have it test every 3 months.
TSH: https://en.wikipedia.org/wiki/Thyroid-stimulating_hormone
Development Pedia - wherein she has been evaluated by Development Pediatrician and adviced to meet her every 3 months for development monitoring and endorsed our Jaymie to undergo physical therapy though we didn’t get clearance from her cardio due to her heart condition.
Genetics Pedia - wherein her blood has been tested for chromosomal abnormalities and we received the results on December 11, 2015 confirming that she has 3 copies of chromosome 21.
Chromosome 21: https://en.wikipedia.org/wiki/Chromosome_21_%28human%29
Unfortunately, our battle continues, our joyful Jaymie was born with a hole in her heart and went through several tests again.
PDA: https://en.wikipedia.org/wiki/Patent_ductus_arteriosus
VSD: https://en.wikipedia.org/wiki/Ventricular_septal_defect
October 20, 2015 – first 2D echo
January 14, 2016 – 2nd 2D echo
March 12, 2016 – 3rd 2D echo
I was on her third 2D echo when her Cardio Pedia explained to us the situation. Told us that we need to have her VSD closed as soon as possible because of the increase of her pulmonary pressure continues to rise, it will become irreversible and we might not be able to close her VSD that time.
After all, we have to stay positive as our Joyful Jaymie has a love and zest of life that is truly unbelievable. There will be a beautiful life waiting for her and can't wait to see her grow one day at a time so please help us raise the necessary funds for her operational needs and recovery expenses. As per our inquiries and research, estimated operation cost would be from 800 thousand to 1 Million pesos ($23,000).
Hopefully, we will be able to raise her needed funds and have her surgery done as soon as possible.
Thank you and God bless!
Jay and Mar Lucas
Wishes do come true in God’s perfect time.
It was an answered prayer on October 16, 2015 when our Joyful Jaymie came to this world, I was lucky to see her in the delivery room. We were very happy seeing our little bundle of joy for the first time after nine long months of waiting and welcome her with so much love and excitement, spreading the exciting news and posing for photos.
The reality has come the following day, October 17, 2015 her Doctor told us that they are seeing physical signs of Down Syndrome. She has flat facial features, with a small, upward slant to the eyes, single deep crease across the center of the palm, fifth finger has only one flexion furrow instead of two, extra space between the big toe and the second toe and enlarged tongue that tends to stick out. It was terrifying hearing the news and pinched ourselves as if we were having a dream.
Doctor referred her to other specialist to do series of test. Our joyful Jaymie has also suffered from Hypoglycemia that’s why we need to leave her in NICU for 3 more days.
We have done tests with the following pedia:
ENT Pedia - wherein she failed her hearing test twice. At first, both ears failed and on the second test her left ear failed. It was on her second month (third test) when she finally passed the hearing test.
Endocrinologist Pedia - wherein she had her first Thyroid test on December 17, 2015. Her TSH was within borderline so it was advice to have it test every 3 months.
TSH: https://en.wikipedia.org/wiki/Thyroid-stimulating_hormone
Development Pedia - wherein she has been evaluated by Development Pediatrician and adviced to meet her every 3 months for development monitoring and endorsed our Jaymie to undergo physical therapy though we didn’t get clearance from her cardio due to her heart condition.
Genetics Pedia - wherein her blood has been tested for chromosomal abnormalities and we received the results on December 11, 2015 confirming that she has 3 copies of chromosome 21.
Chromosome 21: https://en.wikipedia.org/wiki/Chromosome_21_%28human%29
Unfortunately, our battle continues, our joyful Jaymie was born with a hole in her heart and went through several tests again.
PDA: https://en.wikipedia.org/wiki/Patent_ductus_arteriosus
VSD: https://en.wikipedia.org/wiki/Ventricular_septal_defect
October 20, 2015 – first 2D echo
January 14, 2016 – 2nd 2D echo
March 12, 2016 – 3rd 2D echo
I was on her third 2D echo when her Cardio Pedia explained to us the situation. Told us that we need to have her VSD closed as soon as possible because of the increase of her pulmonary pressure continues to rise, it will become irreversible and we might not be able to close her VSD that time.
After all, we have to stay positive as our Joyful Jaymie has a love and zest of life that is truly unbelievable. There will be a beautiful life waiting for her and can't wait to see her grow one day at a time so please help us raise the necessary funds for her operational needs and recovery expenses. As per our inquiries and research, estimated operation cost would be from 800 thousand to 1 Million pesos ($23,000).
Hopefully, we will be able to raise her needed funds and have her surgery done as soon as possible.
Thank you and God bless!
Jay and Mar Lucas
Organiser and beneficiary
Shery Sosa
Beneficiary