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Hi everyone. My name is Skye. December of 2019 I got hit with an atypical case of a rare condition called Idiopathic Intracranial Hypertension. My body thinks my brain has a tumor that isn’t there, so I get a lot of the symptoms of a brain tumor. Due to my case being so atypical I have other issues, such as my epilepsy being made much worse. This disorder takes away my vision, my ability to walk, sit up, or even speak. I’ve been bed bound for 4 months at a time due to this. Im currently on my third state trying to get treatment, and on my 52nd doctor in my current state alone. 50 didn’t even treat my condition. I have permanent vision loss, I have a bit of permanent damage to my brain causing memory issues, and my heart is also being affected now from the stress of this disorder on my body.
I’m trying to work with a doctor now, but it’s not looking promising. I had complications due to two botched procedures and now have a chronic pain condition that leaves me needing a walker or wheelchair in addition to all this. I’m hoping to raise the money to move to Los Angeles, CA to be treated at Keck Hospital of USC and get the treatment and surgery I need for my condition to be put into remission. They specialize in atypical cases of my condition. I’m disabled and can’t work a set job due to how fast my health turns. I have a small business I work on when I can, but I don’t make near enough to live off of. Im asking for 2 years worth of rent as it’s going to take at best 1-1 1/2 years to go through all channels needed to get the surgery I need and recover.
All funds raised will go towards my treatment, living expenses, and travel. Even if it’s just going to places out of network in state or in neighboring states. Thank you if you’ve read this far and for any support or donations. It means the world. ❤️
I don’t like taking things from people, especially money if I can’t pay it back or give something in return. This is unfortunately a time where I have to put my pride aside. When I’ve spent literal years of my life on this journey bed-bound it’s time to accept the help I need. Thank you to anyone who’s read this far. Thank you to anyone who shares this, donates, or sends prayers/healing/good vibes my way. I hope to update you from the hospital in California!!

