After a seemingly perfect pregnancy I was told at my 39th week that my daughter had a heart murmur and would have to be delivered within the next few days, when she was later born at University of Cincinnati hospital she had trouble breathing and was put on a breathing tube.
Throughout the process at UC she underwent several medications to help with pulmonary hypertension and nitric oxide there py. After a week and a half on the 15 of June they then decided to move her to Children's hospital in Cincinnati.
This is were she spent the remainder of her time. Undergoing multiple chest tubes, a stomach tube, different medications, and many many tests and scans. After waiting for almost 5 weeks for genetics testing to come back they found that she had a very very rare genetic mutation that most doctors had no idea what it could be. After 2 months of getting no where and with not having any diagnosis or any answers as to why that was all happening, her organs slowly started to shut down and she started getting worse within hours.
On Monday the 14th of August me and her father finally decided to end her pain and suffering and remove her from the oxygen tube.
Journey went home peacefully in my arms, and we are currently setting up funeral arrangements that we need help paying for. Samples of certain organs are now being used to further research for her problems and to hopefully help other babies in the same situation, though with not knowing anything was going to be wrong this was so very unexpected for her to leave this world so soon and can not currently afford the cost of a baby's funeral. Any help what so ever is very much appreciated.
- Bianca Terminello
- Haley Wetzler
- Laurie Fisher
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