Joshy in Big Sky Country

55821186_1618865319342667_r.jpegJoshy in Big Sky Country chronicles the life and adventures of Joshy, a 17-year-old diagnosed with a rare and terminal neurodegenerative disorder and moderate intellectual disability as he explores his new home state of Montana.

In 2015, Joshy was diagnosed with idiopathic Neurodegeneration with Brain Iron Accumulation (NBIA), a rare inherited neurological movement disorder characterized by an abnormal accumulation of iron in the brain, which causes progressive degeneration of the nervous system. There is no cure and no standard course of treatment.

Since then, Joshy has had a g-tube placement, a complete spinal fusion to correct a 90-degree lordosis, and a  baclofen pump inserted to decrease spasticity and dystonia. He's lost the ability to walk, and pain and weakness characterize his daily life, although it never seems to diminish his smile.

Born and raised in Colorado, Joshy and his family are setting on a new course with a move to Montana to be near family and spend the rest of his days meeting new people and crossing off adventures from his "Big Sky Bucket List." 

All funds raised will help pay for gas, admissions, and other related expenses.  Thank you for being a part of the adventure! 

https://clstansberry.com/joshy-in-big-sky-country

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Organizer

Cheryl Stansberry 
Organizer
Judith Gap, MT
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