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Joseph Detoma’s Brave Fight
Prior to July 2020, Joe was your typical 17-year-old boy. Getting ready for his senior year of high school, logging in too many gaming hours, practicing for his driver’s license, and wanting to play his beloved sport of soccer! He wants to go to college and embark on a career that will change the world . Now all that changed in less than a week’s time.
Having some trouble walking, and feeling some tingling on his right side, Joe’s mother rushed him to the hospital. They were sent for an MRI where they found a mass and then the biopsy revealed what no family wanted to hear; their son had DIPG.
Diffuse Intrinsic Pontine Glioma (DIPG) is considered to be an extremely rare aggressive pediatric brain tumor that steals the innocent lives of children most commonly between the ages of 5-10. Surgery to remove a DIPG tumor is impossible because of its diffuse nature, and there currently is no cure. Just 300 cases affect families in North America each year.
Joe is now undergoing a series of 30 radiation therapy sessions to help alleviate some of his symptoms. When Joe is done with radiation, he will be enrolled in a clinical trial to help shrink the tumor and give Joe the chance to live a normal life; a life that he deserves.
Anyone who knows Joe can tell you how sweet and amazing he is! We want to do whatever we can so that he can continue and live into adulthood. The money raised is going to be used to help with medical expenses, and living expenses incurred for his care.
Joe’s family is devastated. Any help and support would be greatly appreciated. Thank you for all of your kind words and please keep Joe in your thoughts and prayers.
Prior to July 2020, Joe was your typical 17-year-old boy. Getting ready for his senior year of high school, logging in too many gaming hours, practicing for his driver’s license, and wanting to play his beloved sport of soccer! He wants to go to college and embark on a career that will change the world . Now all that changed in less than a week’s time.
Having some trouble walking, and feeling some tingling on his right side, Joe’s mother rushed him to the hospital. They were sent for an MRI where they found a mass and then the biopsy revealed what no family wanted to hear; their son had DIPG.
Diffuse Intrinsic Pontine Glioma (DIPG) is considered to be an extremely rare aggressive pediatric brain tumor that steals the innocent lives of children most commonly between the ages of 5-10. Surgery to remove a DIPG tumor is impossible because of its diffuse nature, and there currently is no cure. Just 300 cases affect families in North America each year.
Joe is now undergoing a series of 30 radiation therapy sessions to help alleviate some of his symptoms. When Joe is done with radiation, he will be enrolled in a clinical trial to help shrink the tumor and give Joe the chance to live a normal life; a life that he deserves.
Anyone who knows Joe can tell you how sweet and amazing he is! We want to do whatever we can so that he can continue and live into adulthood. The money raised is going to be used to help with medical expenses, and living expenses incurred for his care.
Joe’s family is devastated. Any help and support would be greatly appreciated. Thank you for all of your kind words and please keep Joe in your thoughts and prayers.