Hi my name is Bea and I am doing a fundraiser to help a sweet girl named Jordan in her fight to recover from Lyme disease. I first met Jordan in 2012 when she joined my sister and I in our family day nursery. Jordan was an amazing little girl who quickly made her way into our hearts. We spent 3 years together sharing in her early childhood years. Since then we have kept in touch and continue to enjoy and cherish being part of her young life. I am asking you on behalf of Jordan that you take a few minutes to read about her 2 year journey in dealing with this misdiagnosed and devastating disease.

Jordan’s Mom ( Julie) has written an account of what Jordan has been through over the last 2 years.

it will be so very much appreciated if you can donate whatever you can to help Jordan get the treatments she needs to get well and live her best life.

Our journey starts back in July 0f 2020. Like all summers we were doing all the summer things. We had been in BC in July and had also done some camping in Alberta in Early August. In early August Jordan presented with what they call a Bulls Eye Rash. This is a rash that is a result of a tick bite. However, we never saw a tick. We took her to the doctor to have it assessed and because we didn’t actually see the tick he said no chance of Lyme. We believed him and carried on with life. We now know this was 1000% wrong. You don’t need to see a tick, a bulls eye rash is evidence enough. As her mom I feel incredible guilt that I didn’t know enough to push for antibiotics. Fast forward to September and she started getting sore throats, a cough and was very out of breath even going up the stairs. Sounds like asthma right. After many doctors a specialist diagnosed her with asthma and put her on a treatment plan only it didn’t work. So we went on to more doctors, more tests, more blood work, and more trips to the ER. By April she was unable to attend school at all and we withdrew her to teach her at home. By June her health continued to decline. She wasn’t able to walk up the stairs without being out of breath, she was so dizzy she needed help to sit on the toilet at times and she started to have mitigating swelling and pain all over her body. She received several new and incorrect diagnosis. Anyone ever heard of Neuropathy of the throat - us neither. She continued to be put on powerful medication that didn’t work and more diagnosis. One of which was “its all in her head”. We were sent to a cardiologist that refused to look at our lye results and proceeded to say in from of Jordan that it was psychological and she would refer her to a psychological clinic. At this point we avoided all hospitals and doctors. Luckily her mother is a professional “googler” and spent many sleepless night researching what could be wrong

with her. I just new something was very wrong and I refused to put my faith in any doctor. This is when I am cam across Lyme disease and Jordan had every single possible Lyme symptom. She was a poster child for the disease. A light bulb went off - this kid has Lyme disease. I immediately got in contact with anyone who would talk to me and we began the process of testing. We quickly learned that Canadian testing is unreliable and inaccurate so we sent our tests to Armin labs in Germany. One week later we received the devastating news that she did in fact have Lyme disease. Our journey has taken us on many different paths with different Lyme literate professionals. From Chinese medicine doctors, functional medicine doctors and practitioners and natural paths. We have tried every treatment available to us including: accupuncture, massage, cold laser therapy, neurofeedbak, physiotherapy, supplements, Chinese herbal protocols, SOT therapy, Chiropractor, Cranial sacral therapy, CBD oil, detox therapy. You name it we have tried it. We have also invested in more testing out of the US to help us better understand the exact pathogens she has. Now we find ourselves lost and devastated and we need help. She continues to have major struggles including several diagnosis that are a result of the Lyme disease. Including Mass Cell activation syndrome, POTS, dysautonomia, chronic inflammatory response syndrome. THESE ALL HAVE THERE OWN MEDICAL HURDLES. She is having 100s off seizures a day . In fact she could have 100 in as little as an hour . These are impacting her memory significantly . There are times she doesn’t know her name or who we are . She is also unable to walk and lives with incredible pain. It is hard for us to know what is what when it comes to her 100’s of symptoms. Mainstreammedicinecontinuestobeofzero help to us. Ironically it’s the lyme that’s the root cause yet

the continue to not address it. We have been told she has the entire neurology department stumped only because they won’t even say the word Lyme. She continues to crack jokes and do her make up and her dad and moms too . She requires two people with her 24 hrs a day. . So far an incredible amount of money has been spent on her treatment - upwards of $30,000. No price can be put on getting our girl back. She requires IV antibiotic 3 months . Seems simple right? Far from it. We have to pay a private medical clinic to administer and prescribe these drugs. This is incredibly costly. Her treatment is convoluted and we have a long way to go. This disease is unpredictable and we don’t know what will work at this point because she has had it for so long. We will stop at nothing to get our girl back. She is the most special, kind, talented, and amazing human. I have said this from the time she could talk. She deserves to have her life back and live an amazing fulfilled and healthy existence.