Please Help Fund Jordan's Battle

Stumping doctors since 1995 ......

      We are asking to help with funding our daughter's battle with multiple debilitating conditions.
Here are her current diagnosis'  
  
Diplegic Cerebral Palsy
Ehlers-Danlos Syndrome Type 3
Disautonomia
P.O.T.S. (Postural Orthostatic Tachycardia Syndrome )
Chiari Malformation
Scoliosis
Myofascial Pain Syndrome
Fibromyalgia
Mast Cell Activation Disorder
New Daily Persistent Headache


     This has been a life long odyssey.  She has been to specialists all over Ohio .   She lives with a headache in the back of her skull near her spinal cord that has continually worsened over time.  Her blood pressure drops to dangerously low levels and she has had to have IV fluids to help her normalize.   We have an appointment with the renouned Maryland Neurosurgeon,  Dr. Frazier Henderson,  in May . We have to prepay for the office visit.  She needs to have diagnostic testing not offered in any state surrounding Ohio.  She may need a spinal fusion to stabilize her cervicle spine to give her the opportunity to live a semi-normal life.   C1 and C2.  That is where your spine  enters your skull .  Imagine having an unshakable , unrelenting  , unforgiving , unending  headache every day of your life ...........

And then it only gets worse  
and then worse
and then almost unbelievably  ,          

                                 worse again......




         She is known as a medical zebra .  Doctors are
taught  , "When you hear hoofbeats, think of horses not zebras".  Since horses are more common while zebras are relatively rare in the US . , logically one could confidently guess that an animal making hoofbeats is probably a horse.    She has confounded many doctors who say she is beyond their capabilities .  Dr. Henderson is known for expecting and helping zebras . But  the travel , lodging ,  the prepay visit , and the expectation of prepaying for her  very possible , very intricate neurosurgery  is as of now beyond our financial ability. But we believe in miracles and that they come from anywhere . Please help us fund this odyssey.  We are hoping and  looking for  miracles so that she could and would experience her days without debilitating pain.  Which, by the way ,she may not have had one as of yet because she cannot remember  a day without pain .

Not   One  Day

Yet.....

If you could help,
                                     please do ,


and if you would,
                                     please pray for her.   

Everything is appreciated .  


                         Thank You
                                               

Want to see more of Jordan? You can find her on twitter  @jordnflickinger and on Instagram username Jordnflickinger :)