Jon's Medical Journey(undiagnosed)

Jon was a healthy 28 year old a year ago.  He began having severe pain, dislocations, tremors, in ability to breathe properly, symptoms of MS and Lupus.  After a run at every speciality in Colorado and no answers we were referred to the Mayo Clinic.  Jon's journey has been hard and we have had to watch him suffer imaginable pain and suffering.  On June 18th after seeing Internal Medicine there and Rheumatology we were given 30 other tests and appointments to which Jon has to attend and we were given two diagnosis's.  One was Ehler-Danlos Syndrome (Hypermobility Disorder) in which Jon's joints cause him severe pain and his joints dislocate for no reason.  We were also given Fibromyalgia, which is why Jon cannot stand to be touched.  It hurts him so bad  to just let his son set in his lap.  We were assured by Internal Medicine there would be diagnosis in Neurology and in Vascular and Cardiology.  The expenses are great and in order to get Jon's new meds and begin treatments and to get him to and from the Mayo we are asking for your help.  If you can't help then please pray for him and the doctor's who are going to give us answers.  The good news is we are beginning to get answers the bad news is Jon is worsing as this is all happening.  Requiring oxygen and a wheel chair at this point.  Please if you can help....please do.  God Bless  Fox 31 did a story on Jon please feel free to watch it.  http://kdvr.com/2015/06/08/medical-mystery-has-highlands-ranch-dad-heading-to-mayo-clinic/  I have also decided to use this gofundme page as a way to raise money we need for expenses and the $550 we need to take us through next month.  Jon lost his job, after his illness required us moving and all.  Please pray for us.  Please pray for answers and for a means to survive.  Thank you all for all your thoughts and prayers they are appreciated.
  • Karin Schamberger  
    • $50 
    • 66 mos
  • Lui Family 
    • $100 
    • 66 mos
  • Greg Foss 
    • $100 
    • 66 mos
  • Karin Schamberger  
    • $25 
    • 66 mos
  • Ryan Sullivan 
    • $50 
    • 68 mos
See all

Organizer

Christy Watkins Curran 
Organizer
Orlando, FL
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