Donate today to be one of Stella’s Stars!

Stella is one of 200 people in the world with HNRNPH2, a variant on one of her X chromosomes. The disease was discovered in 2016, so there is still much to learn.

Stella is 10 years old. She is a joy to everyone that knows her. The family has an opportunity to attend the HNRNP FAMILY FOUNDATION 2025 Annual Conference & Family Meeting. The meeting is an opportunity to connect families with services, HNRNP-RNDD researchers and clinicians, and the HNRNP-RNDD community.

If you would like to be one of Stella’s Stars and help the family to be able to participate in this wonderful event, please make a donation here on GoFundMe and/or there will be other fundraising events you can participate in.

Thank you!