Join Gabriel's journey to navigate life with Coats disease.

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Join Gabriel's journey to navigate life with Coats disease.

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Hi, my name is Lisa Hunt and I am writing today on behalf of my grandson, Gabriel Torres. Last week Gabriel was diagnosed with a rare, genetic condition called Coats Disease. This took our family by complete surprise. There were no warning signs. It was not until his mother took a flash photo of him and his left eye had a yellow glow to it. She immediately called his doctor to schedule an appointment. The pediatrician did their normal routine eye exam and found something in Gabriel's eye. They told my daughter not to wait and sent them to Yale Hospital and from there they were referred to Boston Children's Hospital, where he was officially diagnosed with Coats disease. This disease affects .09 in 100,000 people in the US. They stated that it was very lucky that my daughter was even able to catch it. This disease has 5 stages and he is currently in stage 4, which means he has little to no vision in his left eye. He has a sedated exam coming within the next week and then he will need a sedated MRI. These exams will give us a better understanding of his prognosis and treatment plan. He is going to need multiple visits to Boston's Children's Hospital as there are only two specialists on this side of the country that specialize in this disease. This is going to be a long road for Gabriel with multiple surgeries. We are asking for your help to lessen the financial burden that will inevitably overcome my daughter and her family. We would also like to raise awareness for Coats disease as it is very hard to detect. Any and all donations would be greatly appreciated and we thank you for all your love and support.

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Lisa Hunt
Organizer
Seymour, CT
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