Join Alley's Fight Against Sudden Vision Loss diseases

Asking for prayers and donations for Alley Izabell (Izzy). Last Wednesday (6/18/25) about 10 pm, she complained about seeing grey spots in her left eye and a slight headache. She tried to sleep it off, but Thursday morning when she woke up, her vision was still affected. Around noon, she called and said it had gotten worse, that the spots were getting bigger and combining together. That evening, we took her to the ophthalmologist where they did an eye exam and took pictures of the back of both eyes. Their findings were normal for what they could see. They gave us a referral for a neuro-ophthalmologist (which couldn’t get her in right away), so we took her to Kaufman Hospital where they took a CT scan and said all looked normal to them. We went home, and Friday morning we came to Children’s Hospital in Dallas. They got her right in and immediately started running tests and did an MRI. They had us sign a consent for them to give her sedating meds and then do a spinal tap. We did the spinal tap (which seemed like it took hours); they needed so much fluid to send off for different tests. After the spinal tap and MRI, they checked her into the neuroscience floor to keep her and figure out what is causing the significant quick onset vision loss. We have been here now for 10 days and are still waiting for several results to come back. Her MRI came back with a small spot on the left side of her brain, and her left optic nerve is swollen. They started her on a strong dose of IV steroids her first night here to try and bring the swelling down. After 5 days on steroids and not much vision change, doctors decided to have a central catheter line put in her neck and start plasmapheresis, where they remove her blood and clean it by taking her plasma out (which they are thinking her antibodies are infected) and replacing it with synthetic plasma and then putting her blood and the new plasma back in. Her first treatment was a horrible experience; the machine kept messing up, and we noticed the tech was nervous, so we got nervous. Since the first round, our anxiety has been pretty high when it’s time for her treatments. Her second treatment, she had to have a plasma transfusion due to her clotting level being so low. Today was her 3rd treatment; so far, it was okay, she’s just exhausted. We have gotten some test results back which are pointing to MS or MOG, but it still could be a different autoimmune disease that we don’t know of yet. She has such a long road ahead of her. I have not been able to work since we have been in here, and at the moment, she has no kind of insurance. I am in the process of trying to get Medicaid or some kind of medical assistance, but we all know that can take a while. Please consider donating to help offset the financial stress while I am with Alley at the hospital at this time. If you cannot donate, we ask that you PRAY for Alley. We know that God is in control and that He is faithful. Thank you for all of the prayers, calls, and texts we’ve already gotten checking in on her.

7/3 update: we are still at children’s hospital, she completed her 5 rounds of plasmapheresis so we were happy about that but then neuro came and seen us last night and said they wanted to continue doing the treatments so….. we will do more rounds of the plasmapheresis to try and get back as much of her vision as possible. They also came and told us that all of her results were finally in and they don’t have a POSITIVE diagnosis but everything is looking like MS (multiple sclerosis)! Definitely not what we wanted to hear especially since they still are 100% sure. We were told that the spot on her brain that showed in the MRI was on the line of being something they’d worry about and then being something they wouldn’t worry about so with that spot plus her optic neuritis and vision loss they are diagnosing her with MS. We are still so overwhelmed and exhausted I’m not sure that we’ve taken in how much this is actually going to affect our lives yet….especially hers- she’s 14 and has a whole life ahead of her and has so many plans and dreams already….. we just don’t want a wrong diagnosis affecting her life for the worse.. so please please KEEP PRAYING for our baby. Pray we find the cause for all of this she’s going through with the vision loss and if MS is the reason pray she gets the best treatment so she can live a normal life and still accomplish everything she has planned. With GOD all things are possible! Your Prayers, support and donations help make this long journey she will be on a little more manageable and we appreciate each and everyone of you so so much for everything everyone has done for us and for her so far. Thank you .